,"Title","Body","Authored by","Authored on" ,"Greetings from the great white north!!","Hi Carol! I hope you are having a safe trip. There is snow everywhere, more fell last night and we are supposed to have more today. We are about 25 miles north of Weed which is just north of Mt. Shasta. My son goes to the college in Weed and my daughter's ballet teacher comes up from Mt. Shasta so we are all pretty close here. We were hoping to go to Medford tomorrow for our anniversary (23 years!) but I am thinking it would be smarter to stay home, it is also our second daughter's 14th birthday. School is supposed to start back on Monday but I don't know if that will happen if the snow keeps up. Eva's birthday is on the 7th, she will be ten and in our house that means she is responsible for her own laundry! ( I an sure the kids always appreciate the box of laundry detergent as a birthday gift!) Anyway- jumping into the new year with lots of expectations. Hopefully I will be able to meet some of those. Also - I had noticed at the pharmacy the Freestyle Flash meter. It looks interesting , does anyone have experience with it? I like the Idea of a back light and a test strip light. Right now we are using the One touch ultra and the ultrasmart and I stil haven't utilized all of the features on the ultrasmart. Any input would be great. I hope everyone is safe and sound! Have a safe new year! - Cyndy Heintz","sackid-yahoo-groups","Fri Jan 2, 2004 09:28 PM" ,"File - Good Websites","Please make sure that you check the websites that have been posted in the ""LINKS"" section. A wide variety of websites have been posted. PLEASE POST THE ONES YOU THINK WILL BE GOOD AND WE WILL REVIEW THEM AS WELL HOW TO GO TO THE WEBSITE AND SEE THE LINKS: How to TUTORIAL: 2 PARTS: PART A If you are already registered with the site: 1st Step: Go to http://groups.yahoo.com/ 2nd Step: Left Top Corner – Will have a sign in: Click on that 3rd Step: But in your User ID and password and click enter 4th Step: You will go to the Yahoo Group page: Left corner you will see the group name (SACKIDDIABETES) – Click on that and you will go to the site Alternatively: Again if you are Already enrolled: Go to: http://groups.yahoo.com/group/SacKidDiabetes/ And sign in with your yahoo ID. If you have just been invited or added on to the site: You will get few emails in the beginning: Some of the files which the moderator wants you to see when you join (eg. Did you do it? Etc) Click on the email that says: Welcome to the SacKidDiabetes group. To send email to ALL the group members: Just TO START SENDING messages to members of this group simply send email to SacKidDiabetes@yahoogroups.com TO GET OFF THE LIST: unsubscribe by replying to this message, or by sending an email to SacKidDiabetes-unsubscribe@yahoogroups.com PART B: TO ACTUALLY GO TO THE WEBSITE: You have to have a Yahoo email ID, even though you can use your own email. At the bottom of the same email you will see link: http://groups.yahoo.com/group/SacKidDiabetes either click on it or type that address to go to that site. If you already have a yahoo ID you can just sign in. Otherwise you will have to click on “register” You will be taken to a page to register. Create a yahoo ID and fill the whole page up: It is self-explanatory. MAKE SURE THAT YOU PUT IN YOUR ALTERNATE EMAIL AND THE EMAIL YOU WANT TO USE. Otherwise all your emails will go to the yahoo email address Once you have completed, the bottom of the page will show a word – which you have to enter into the rectangular space. It is complete now: Just make sure you remember your Yahoo ID and password Now you get the next page which will give your ID and a yahoo email if you need one. Go to the bottom of that page and click on “continue to yahoo” Now you will go to the SacKidDiabetes page: Click on the link, which says: (Already receiving group email?) It will take you to a next page that will show your original email ID: Click on the part that says, “verify” after your email ID. It will take you to another page that will ask for your Yahoo ID and password. Once you enter that it will take you to another page that will verify your account. Just follow the instructions in that page which will ask you to go and check your original email box: In your email box you will see two emails: Welcome to yahoo and Registration Confirmation. Open the email, which says “registration confirmation” you, will see your Yahoo ID and your email address. Click on to verify your email address. You will go to a page which will say: “Checking for membership” Click next to your email address that says: “ Get Web Access “ Now it takes you to the next page that will let you manage your group behavior. Fill this page up: Click on save changes. You are now officially allowed to go into the WEB PAGE!! – REMEMBER THIS IS ALL FOR YOUR OWN PRIVACY ","sackid-yahoo-groups","Sat Jan 3, 2004 04:35 AM" ,"File - Group Information","Please remember that this group discussion is an important tool for diabetes self management. But it is important that we do not spread any negativity across to any parent, knowingly or unknowingly. Some simple comments might hurt a child or a parent. THIS IS TO KEEP EVERYONE HAPPY and SECURE. Also learn to use the website effectively. For example instead of getting multiple emails you can choose to receive one email a day - with all the mails bundled into one. Ultimately, our goal is to create different subgroups among the children and families to address: Vacation, school, college, scholarships, cooking etc. This group should become the most powerful support group in the country. I am sure we can reach there AND we will reach there","sackid-yahoo-groups","Sat Jan 3, 2004 04:35 AM" ,"File - How to register TUTORIAL - Sac kid diabetes.doc"," File : How to register TUTORIAL - Sac kid diabetes.doc Description : This file gives you all details regarding enrolling, unsubscribing and other IT stuff","sackid-yahoo-groups","Sat Jan 3, 2004 04:35 AM" ,"File - Appointments and Prescription Refills","This is an automatic reminder once every month to 1. Check your supplies 2. Throw away expired supplies 3. Make appointments to see your Doctor and your TEAM UNFORTUNATELY, AT THIS POINT OF TIME DR. PRAKASAM DOES NOT ACCEPT EMAIL CONSULTATIONS. WE CERTAINLY THINK THAT IT WILL CHANGE IN FUTURE. ","sackid-yahoo-groups","Sat Jan 3, 2004 04:35 AM" ," File – DISCLAIMER","Please remember that this list serv is created to link all families who have diabetes and is NOT A MEDICAL ADVICE OR SUPPORT SERVICE. Dr. Prakasam or others who share this list serv are not responsible for any message, advice or comments posted on this group. Dr. Prakasam or any of the others (who are in the medical profession and are on the group) do not take any responsibility for any medical needs, concerns or requests posted on this group page. Dr. Prakasam or others will not respond to any medical questions or 'need for help' posted on this group. Please use caution when you let your children use this group. It is entirely your responsibility to decide whether you or your child want to stay in the group or leave the group. PLEASE SUPERVISE YOUR CHILDREN AND THEIR EMAIL INTERACTION AS YOU WOULD NORMALLY DO IN ANY EMAIL/GROUP - Please be aware that anything you post on this group is being read by all the members who might be sharing it with others as well. It is important to remember that this not an advice group. If you want advice regarding your medical care, you need to talk to your medical care providers. If you have any worries, concerns, doubts or anything negative - PLEASE UNSUBSCRIBE YOURSELF AND YOUR FAMILY NOW. Thanks for understanding - Please help to develop and a strong companionship and support service and use the service intelligently. This is a legal disclaimer","sackid-yahoo-groups","Sat Jan 3, 2004 04:35 AM" ,"Re: Digest Number 190","In a message dated 1/2/2004 3:07:43 PM Pacific Standard Time, SacKidDiabetes@yahoogroups.com writes: Also - I had noticed at the pharmacy the Freestyle Flash meter. It looks interesting , does anyone have experience with it? I like the Idea of a back light and a test strip light Cyndi, Yes, we just got the Flash meter for Kyle. He is 5, and the small size is perfect for his small hands. He can manipulate the lancet device more easily I think because it is smaller, and easier for him to hold. The light is very useful - last night I tested him in the dark in his room, and could even get the blood on the strip because the light illuminates the strip as well. I just ordered the free computer cord that you get, and my $40 rebate. The entire unit is very compact, and easily fits in my purse or fanny pack without taking up much space. So far, we love it. Katie Horn","sackid-yahoo-groups","Sun Jan 4, 2004 02:46 AM" ,"RE: Digest Number 191"," > Hi Katie- Thanks for the info- I will have to work on the cost , we would probably use it for our night testing, We had a Profile from before where the case actually glows in the dark and it has the strip light. It was much bigger. Still snow up here , back to school tomorrow and the grind. Hope everyone is well- thanks again- Cyndy Heintz ","sackid-yahoo-groups","Mon Jan 5, 2004 07:44 AM" ,"RE: Digest Number 191","Hi, Re. the Freestyle flash meter: My 19-year-old daughter reports from UC Santa Barbara that she loves it. The light alone is worth it. The size is great, too. Happy New Year, Lyra Halprin (for Julia Halprin Jackson) Davis","sackid-yahoo-groups","Tue Jan 6, 2004 05:18 AM" ,"re: UltraSmart meter","Hi, I have been reading the posts in re: to the Flash meter. We've had our OneTouch UltraSmart for about 3 weeks now.....there are only 2 downfalls I have with it: 1. The backlight does not illuminate the strip, so I still have to turn on the night light to make blood contact. 2. although I am glad it reminds me to run controls, about every 15 strips I get a ""check code"" on screen. Well, if I am not paying attention (and it usually happens at 3 am!) I end up wasting a strip and having to get another....hopes that I can still squeeze out a drop without poking again, because it wasn't asking for blood yet....okay, perhaps only minor inconviences....FYI. Melissa","sackid-yahoo-groups","Tue Jan 6, 2004 11:25 AM" ,"Our little achievements!","Me again..... Dr. Prakasam's post re: achievements had me thinking. Diego will be 2yr on Jan 31st. He was dx'd last March. He is at one of the funnest stages for me. He is starting to say lots of words and imitate big brother......He's definetely got a ""social"" personality. I rarely see him in a bad mood and when he is, it's easy to get him happy again. Just recently, he stuck his finger out and said, ""sugar"" (more like ""shugggr""! :) ) So I checked him and he happened to be 67! This is a great milestone for me....and, hopefully, him. I have been checking him practically 8 times a day because I just don't know when he's going to be high/low. I don't expect him to do this all of the time, but it is a tiny step forward for him ""feeling"" and then communicating what he needs. I think of many of you throughout the week and all of the different situations there are and complications....... I pray that you have a great milestone also this week.......God knows you need the encouragement! Melissa","sackid-yahoo-groups","Tue Jan 6, 2004 11:37 AM" ," File - DID YOU DO IT?"," Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness.","sackid-yahoo-groups","Tue Jan 6, 2004 11:14 PM" ,"Re: Our little achievements!","Wow! that's great Melissa! And your right, what a wonderful age to watch a child learn, grow, and discover. With my youngest nearing 4, with some sadness I realize those todler days are behind us. Although Clay, at 5 never really left the ""terrible twos"" so maybe that counts ;) Anyway, best wishes for you and your family in the new year! Take Care, Clay's Dad, Mark","sackid-yahoo-groups","Wed Jan 7, 2004 03:12 AM" ," Freestyle Flash Meter","Raley's has discounted it until January 6th at $40 $40 + $40 rebate = FREE","sackid-yahoo-groups","Mon Jan 5, 2004 08:13 AM" ," type I and virus cure?","Hiya folks, As a researcher, I probably shouldn't post things like this: http://hum-molgen.org/NewsGen/01-2004/msg03.html It concerns the curing of prediabetic mice by infection with a particular virus. I haven't read the article, but the implications, as well are all aware, would be astounding. I thought it was interesting and came from a source probably no one else subscribes to. cheers, John F. Hess, Davis California jfhess@dcn.davis.ca.us Land Rover Dormobile web pages: http://wheel.dcn.davis.ca.us/~jfhess/homepage.html 1968 Land Rover Dormobile ""Elvis"" 1960 Land Rover 88 PU ""Stubby"" 1966 Mercury Monterey ""Tillie"" mine: 1999 Bianchi Milano, 2002 Merlin Extra Fat, ours: 2002 Meridian Attache Softride Tandem","sackid-yahoo-groups","Wed Jan 7, 2004 10:33 AM" ," RE: Digest Number 193","Dr.P you said you wanted achievements this month, well after our appt. with you yesterday we got home and MAREESA GAVE HER OWN INJECTION IN HER ARM!!!! It was all her idea. Afterwards she was so happy and said,Dr.P would be so proud of me! She actually wanted to call you right then and there, but I talked her into an e-mail instead, LOL. We both had such a happy moment I couldn't stop crying because I was so proud of her and all this tension just fell off of me(and her of course) She will watch the video you gave her on the pump after school today. A promise is a promise. You had such a positive impact on her yesterday(even though she didn't know it yet) You were all right when you said she would do it when she was ready.....It is so nice to have this support! Thank all of you again for responding,and a BIG THANK YOU to you Dr.P for caring and loving so many of our children. How's that for an achievement??? We will try for the pump now-in Mareesa's own time....oh I can't forget Pam and her son for letting Mareesa look at his new pump yesterday! Thank you Too!","sackid-yahoo-groups","Wed Jan 7, 2004 08:23 PM" ,"Re: Digest Number 194","ello Everybody, I feel just as ecstatic as Marisa Mom, About Marisa giving her own shot in the arm. When Lexie got home from her visit with the pen team & Dr. P. today She also Administered her own shot in the arm this is a new milestone for Lexie and our Family. You see Lexie was diagnosed @ 18 mo. and has never got a shot any where else but her belly. And of course we the parents did them for her. So Hooray For Marisa and Lexie! and any other of you first timers. Lexies Mom Jenny ","sackid-yahoo-groups","Thu Jan 8, 2004 04:15 AM" ,"Introducting myself....","Hello everyone, My name is Mark Graves and I have a daughter, Alexandria, 5 who was diagnosed with type1 diabetes 2 years ago. I was a type 1 diabetic for 28 years until 10 months ago, when I underwent a kidney/pancreas transplant. And all I can say is WOW what a diffrence it is living with diabetes for most of your life and then to wake up without it is really diffrent. I am very involved with my daughters diabetes, one thing I have found is that she has always understood what I did to help control my sugars, so when it was time for her to start checking her blood and getting shots, her responce has always been just like dad. The one thing that breaks my heart sometimes is when she comes up to me and says she wishes I had diabetes again, so I could be just like her again. Anyways, I am a divorced father and was wondering does anyone else have any problems with their ex in reguards to diet, blood testing, and control? Thanks and take care, Mark Graves","sackid-yahoo-groups","Thu Jan 8, 2004 10:47 AM" ,"Re: type I and virus cure?","Hi John, You are right, there are probably not many of us who read the International Communication Forum in Human Molecular Genetics. What is it that you do, if you don't mind my asking? I appreciate your posting this, I live on hope and every little/big discovery gives me more. In light and love, Carol p.s. I contacted our pastor about using the church for your diabetes day camp for kids and he should get back to me soon. He's been out of commission this fall because he wrestled with a table saw and the saw won. But he's got 3 of the 4 fingers he lost reattached and the nerves are regenerating so he's back in action now. ","sackid-yahoo-groups","Thu Jan 8, 2004 11:55 AM" ,"Freestyle Flash Meter","Hi Everyone, I was in Raley's today in Auburn and saw that they had a large display of the new Flash Meter. I asked about it and was told they were not still on sale, but if I wanted one they would extend the sale and sell it to me for $40. So, if you missed their sale go to your Raley's anyway and ask, they may still give you the sale price. In light and love, Carol","sackid-yahoo-groups","Fri Jan 9, 2004 12:06 PM" ,"the snow is starting to melt :(","Hello everyone- many thanks to all of you who responded to my inquiry of the freestyle flash meter. It sounds great. Congratulations to marisa and lexie for taking charge! I was watching eva the other day while she was talking to her siblings and doing a shot , she never missed a beat and it occured to me how I have taken that for granted, so I thank you for making me aware of how much I have to be grateful for. Went shopping yesterday four carts full! It made me realize how truly blessed we are not just to live in a place where an abundance of good food is available but also to have ready access to the medications our children need to live. Oh yes, Carol so sorry to hear about your pastor's unfortunate accident. Well, off to do a million things today. Ean was high last night , site had been loose but we aren't sure how long . So, he was HI and we bolused and then tested every two hours and of coursed encouraged fluids ( which made him wet the bed , he hates that) and he went to 56 at 2 am but that was at least an hour after all of the insulin was gone. He usually will drink anything through a straw while he is asleep and doesn't even wake up. He did ask if he went low last night because he had a headache this morning. Anyway, it is great to hear from everyone. Hope you are all well- cyndy heintz > > ","sackid-yahoo-groups","Fri Jan 9, 2004 10:36 PM" ,"RE: Digest Number 196"," Hello! So happy for Lexie and Mom!! What a great thing to happen to both girls and Mom's in the same week!! When I read your e-mail a BIG SMILE came over me!!!! Great job, Lexie!! -----Original Message----- From: SacKidDiabetes@yahoogroups.com [mailto:SacKidDiabetes@yahoogroups.com] Sent: Friday, January 09, 2004 4:08 PM To: SacKidDiabetes@yahoogroups.com Subject: [SacKidDiabetes] Digest Number 196 There are 2 messages in this issue. Topics in this digest: 1. Freestyle Flash Meter From: ""carolldavies"" 2. the snow is starting to melt :( From: ""Cyn H"" ","sackid-yahoo-groups","Sat Jan 10, 2004 05:42 AM" ,"RE: Digest Number 196","In a message dated 1/9/2004 4:09:43 PM Pacific Standard Time, SacKidDiabetes@yahoogroups.com writes: Hi Everyone, I was in Raley's today in Auburn and saw that they had a large display of the new Flash Meter. I asked about it and was told they were not still on sale, but if I wanted one they would extend the sale and sell it to me for $40. So, if you missed their sale go to your Raley's anyway and ask, they may still give you the sale price. In light and love, Carol WOW! That's an awesome deal, because you can get a $40 rebate in the mail! I paid about $70 for mine, but figured with the rebate, it was worth the 30 bucks. It's been great! Katie ","sackid-yahoo-groups","Sat Jan 10, 2004 12:51 AM" ," Re: Introducting myself....","Hi Mark, I usually do not respond to the emails, however I do read as many I can for education and inspiration. I was very moved by your story regarding your daughter wanting you to still be like her. My recommendation is to find some other girls around her age that have Type 1 to introduce her to, even if it is a once a month visit, just so she knows that she is still not alone. My son has been diagnosed since he was age 7 and now he is 13 years old and recently has been put on the insulin pump. That has been incredible experience for him and his self esteem, however we are still have challenges getting his blood sugars to a norm. You wrote also you were experiencing challenges with your ex, well I moved here from Houston 4 years ago so my two boys could be closer to their father, I am single too and since then I have had many challenges with my ex. I could give you more advice except I do not want to write about personal things on this forum. However, please email at libbygesford@sbcglobal.net and I would more than be happy to discuss with you. Congratulations on your transplant surgery, I think that is wonderful. Libby","sackid-yahoo-groups","Sun Jan 11, 2004 02:58 AM" ,"Re: Introducting myself...."," Hi Mark, I read your post recently and it touched me. I am a single parent also and my daughter was diagnosed 10 months ago. She is 8 years old. I really do understand what it like trying to deal with the ex- spouse on diabetes control. It can be quite a challenge, but just hang in there. If you wanna talk more in depth about it, please feel free to email me at Michelle8668@hotmail.com. I would also love to hear more about your surgery. Sincerely, Michelle :) ","sackid-yahoo-groups","Mon Jan 12, 2004 06:20 AM" ,"Granola Bars","Hi all, Does anyone have a granola type bar or an energy bar that your child will eat that you can carb count reliably? My children like to carry bars in their pockets when we ski but I have noticed that Talia is consistently high when she has these. We've tried the Cliff and Luna bars, any other suggestions? Thanks. In light and love, Carol","sackid-yahoo-groups","Tue Jan 13, 2004 12:56 AM" ,"Re: Digest Number 198"," Hi can anybody give me the site info that I need to check out the different types of Insulin Pumps that are available. Lexie will be on the pump by summer and I need all the info I can get. Thanks Jenny ","sackid-yahoo-groups","Mon Jan 12, 2004 10:46 PM" ," Re: Digest Number 194","Thanks to John Hess for the interesting posting about the virus curing the prediabetic mice. I really appreciate pointers to new research. At the local JDRF Walk for the Cure awards evening last Thursday (Northern California Inland Chapter, 1329 Howe Ave., Suite 110, Sacramento 95825), a diabetes nurse educator caught us up on research projects JDRF is funding. Several of us also talked about the very cool research I mentioned on this listserv a few months ago, the one that involves putting spleen cells from live donors in diabetic mice. The spleen cells were supposed to help the mice getting islet cell transplants so they didn't have to take as many immune suppressant drugs. Amazingly, the spleen cells started producing insulin! They were acting as sort of ""pre-stem cells."" It was very encouraging. I had heard of this research when my daughter was diagnosed almost 3 years ago and now they are about to start human trials. This research is taking place at Massachusetts General Hospital in Boston with Harvard researchers. (reported in the journal Science on Friday, Nov. 14: http://news.bbc.co.uk/1/hi/health/3266987.stm) Dr. P. said not to get too excited (dang!), but to focus on keeping our kids really healthy so when the cure arrives (SOON!), their bodies will be in great shape. That's what we're trying to do;>) Sincerely, Lyra Halprin, Davis Teamhj@aol.com","sackid-yahoo-groups","Tue Jan 13, 2004 04:49 AM" ," Re: Digest Number 183"," I hadn't seen that Tamara had also posted the info on the mice/spleen type 1 breakthrough in the Dec. 30 SacKidDiabetes. Isn't it COOL?! (I'm catching up on my email!) Lyra Halprin Davis","sackid-yahoo-groups","Tue Jan 13, 2004 04:55 AM" ,"Re: Digest Number 198","Hi Jenny, The website for Insulin PUMP comparisons is at the ""Diabetes Mall"" http://www.diabetesnet.com/diabetes_technology/insulinpumps.php Pump therapy has been great for Talia. The PENS team has a good process for getting you going. In light and love, Carol","sackid-yahoo-groups","Tue Jan 13, 2004 11:41 AM" ,"Questions about silhouette settings"," Can anyone give us advice on the silhouette sets for the paradigm pump. Can you place the set in the behind or does it just have to be placed in the stomach. Thanks for any advice that may be given. My daughter has been pumping for almost a year and we experienced some major difficulties with the new quick set plus. So severe that she ended up in the hospital with staph infection and severe dka. We have changed to the silhouette set now. Best to all Laura Findlay ","sackid-yahoo-groups","Fri Jan 16, 2004 03:12 AM" ,"More Achievements!","A quick note to further Dr. P's request for our kids' achievements--and I've got a great one! Last Sunday Clay gave himself a shot all on his own! Not only that, but he's done it consistently since then. In the past he had participated (occasionally) by pinching the site, or sometimes pushing the plunger after Michelle or I inserted the needle. But we never pushed him on it, just gave encouragement and praise. He came up with the idea to do it on his own. The first time nearly brought me to tears I was so proud! Wow. Take Care, Clay's Dad, Mark Clay is a beautiful, high-spirited, 5 1/2 year old boy dx 7 months ago.","sackid-yahoo-groups","Fri Jan 16, 2004 06:58 AM" ,"Re: Questions about silhouette settings","Hi Laura, Talia is 5 years old and has been using the Silhouette infusion sets since last May when she began pumping. You can use it on the behind, we do. Her rotation is 2 sites on the right tummy, 2 sites on the left tummy, 2 sites on the left behind, and 2 sites on the right behind. We have had very good luck with these infusion sets, seldom having sites go bad and they last for 3 days. I believe the longer cannula helps with these things. We do tape her sites down, cutting the big rectangles of tape in four strips and putting them all around the edges of the tape on the site. This keeps them on, even when we swim daily. When she puts a new site in, she pinches up a chunk of skin pretty tight, then slides the needle in just under the skin at about a 45 degree angle. I help her aim the angle but she usually does it more shallow than they recommend, like at about a 30 degree angle. She says this feels better to her and the sites work so I think it must be ok. She wears the longer tubing so she can set the pump on the floor when dressing and stand up to pull her clothes up and not have it pull against her site. We usually only change her sites after she has had a bath so she is clean and so it is easier to pull off the old site. I check her blood sugar 2 to 3 hours after the site changes to make sure the new site is working. I hope this info helps you, I know that the insertion needle on the Silhouette can seem intimidating at first, but you get used to it. In light and love, Carol ","sackid-yahoo-groups","Fri Jan 16, 2004 11:33 AM" ,"Re: More Achievements!","Congratulations Clay, Mark, and Michelle !!!! Aren't our children amazing? They have an inner strength that never ceases to amaze me. In light and love, Carol ","sackid-yahoo-groups","Fri Jan 16, 2004 11:37 AM" ,"RE: Digest Number 200","Hi Mark, I'm so happy for Clay!!! It is such an achievement for him!! I know how you feel when it brings you to tears because you are so proud.....Yes these kids do have an inner strength that just constantly amazes me. I'm very happy for the both of you. Keep us posted. Mareesa is still giving her injections and proud of it!! Take care","sackid-yahoo-groups","Fri Jan 16, 2004 08:46 PM" ,"RE: Digest Number 200","Michelle & Mark I know how you feel. Congratulations To Clay for a job well done keep up the good work. Jenny Lexies Mom","sackid-yahoo-groups","Fri Jan 16, 2004 05:13 PM" ,"RE: Digest Number 200","my daughter was on the pump for two years and she would only put it in the behind. We used the silhoutte infusion sets and liked it the best. We put it in the upper buttocks in the fatty area. she would not let us try any other place! I have a 7yr old diabetic(since 7 months old) and a 3 yr old with hyperinsulinism) Anthea(I read the groups posting, but rarely respond!) On Friday, January 16, 2004, at 05:14 AM,","sackid-yahoo-groups","Fri Jan 16, 2004 11:02 PM" ,"RE: Digest Number 200","Hello Everyone- I have tried posting and have not been successful, hopefully this will work. I have not been very happy with the new quickset infusion set. I'm not really sure why they changed things. I don't think that the extra fuss with the needle is worth the ""swivel "" addition. It is a little easier to take the covers off of the adhesive while pressing on the needle cover though. As far as granola bars go... we buy the cheapest brand at Wal*Mart. They are Sunbelt brand and they have the chewy kind or the fruit filled, with the chewy holding up better in a kit or backpack. I have taken an audio cassette case and put the chewy kind in it in Ean's kit so it doesn't get all smashed. These are really reasonable ( about $1.50 for a box of 8) and the carb count is comparable to the more expensive brands. We found out a long time ago (Elliott, now 20, was dx at 11) that the only ""specialty"" items the kids really need to use are Sugar-free Koolaid, diet sodas and sugar free jello. All of the other stuff that is ""Diabetic specific"" is usually not a great savings of carbohydrate grams, and they usually cost twice as much. Food for Thought! We have discovered another addition to the ""It Works for Us"" category....I ran out of the Detachol we were using to take the adhesive off of Ean's old site ( great product but expensive) so we decided to use peanut butter! ( don't ask me why) So, we just spread a little peanut butter on Ean's tummy, let it set a bit, and wiped it right off! He had a lot of fun with that, and no irritation from all that rubbing. I guess this would work as long as there were no allergies involved. Anyway- enough of my opinions for now. We come down on the 25 th for our appointments on the 26th. It is great to hear how everyone is doing and especially all of those milestones. Congrats to the kids who are taking charge, keep up the good work!- Cyndy Heintz ","sackid-yahoo-groups","Sat Jan 17, 2004 12:12 am `" ,"An Achievement ??","Hi All, A couple of night's ago Talia's blood sugar was high at bed time so I checked her blood sugar a couple of more times in the night in case her infusion site for her pump wasn't working. All together I think I went into her room 3 or 4 times that night because she also had a pump alarm for a low reservoir and an alarm for a no delivery. On one of my trips in I was feeling pretty tired and a little less than cheerful. When I got to her beside she said, ""Hi Mom, I hardly ever get to see you in the night, isn't it nice."" Then she held her arms up to me so I could hug her. I couldn't believe it, she was glad to see me. The next morning she was pleasant and moved through her day just fine. I believe it is truly an achievement to be able to have your sleep disturbed multiple times and be ok with it. I think she could grow up to become an endocrinologist and have her days and nights interrupted and be just fine with that. And for myself, I'm just trying to learn how to be as flexible as she is. In light and love, Carol","sackid-yahoo-groups","Tue Jan 20, 2004 11:44 AM" ,"Freestyle Flash Meter","Hi All, Talia really loves the size of the new Freestyle Flash meter and the fact that the BD Ultra-Fine 33 lancets work in the lancer. I downloaded the free software to analyze the data from the monitor. I got the software at: http://www.therasense.com/FreeStyleConnect/index.html I ordered the data cable for the Freestyle (there was coupon for a free cable in the box with the meter) and when it arrived I was able to connect the cable to my computer, plug the monitor in and download the data from her meter. It was all pretty easy with very little setup required. The reports make it easy to interpet her blood sugars, watch for trends, and make insulin adjustments. I personally prefer the One Touch UltraSmart meter because it has alot of averaging functions you can use to watch for blood sugar trends but it is alot bigger and heavier than the Flash Meter so it is not as convenient for Talia's 5 year old size hands. I am finding that diabetes has taught me the gift of flexibility; I am nothing if I am not flexible. In light and love, Carol","sackid-yahoo-groups","Thu Jan 22, 2004 12:39 AM" ," Paradigm 512 and Bolus Wizard","Hi All, Are any of you out there running Medtronic's 512 insulin pump and using the bolus wizard? Do you like it, does it work, and are you using the BD blood glucose monitor with it? We just received Talia's 512 today and I have some reservations about the bolus wizard. One of our older daughters is about to turn 18. We got her senior pictures back around Christmas time and I can't believe how beautiful they are. She is making her final choice for college soon. I believe it wasn't that long ago when she was Talia's age and playing in dress up clothes and wearing her Grandma's jewerly. Where do the years go? It is so important to treasure every moment that we get to share with our children. In light and love, Carol ","sackid-yahoo-groups","Thu Jan 22, 2004 10:52 AM" ,"Re: Digest Number 203","Carol, My daughter Ashley just switched to the Freestyle Flash also, after trying several different meters. We still have the older Paradigm pump, therefore no bolus wizard, but we did switch to the BD meter that minimed sent in anticipation of the upgrade. We found the BD meter to be totally unreliable. In 5 months time we had to replace the meter twice,order 2 seperate cables (which ultimately never worked with the software, and had to order extra strips due to multiple error messages (mostly E-3). The readings were also often not reliable, so we started with the Flash and are very happy. After 2 months, Ashley has not had a single error reading, and the software is easy to use. This is a long way of saying that while we are not using the bolus wizard, I too would be a littlel uncomfortable about allowing the meter to calculate the bolus dose according to the reading. Hope this helps and doesn't confuse! ","sackid-yahoo-groups","Thu Jan 22, 2004 11:08 PM" ,"Re: Digest Number 203","So Carol, It sounds as if you got the cable already for the flash meter? Didn't you get your meter after I got mine? Let's see, it was Thanksgiving time that we got it, but I didn't send in the form for the cable till Dec. sometime. How long did it take to get the cable? Because I still don't have one..... Katie ","sackid-yahoo-groups","Thu Jan 22, 2004 07:07 PM" ," Exciting news for all of us!! This is long!","Hello to everyone! We have been waiting a long time to make this announcement so today is a great day for many of us. Quite a few months ago, a group of us decided that we weren't satisfied with raising money on behalf of our children and sending it to a national organization. There is some guilt in saying that because deep down we all want one thing...A CURE FOR OUR CHILDREN. In talking with professionals, our own dr. included, we learned that there is a lot of money going to research currently and more all the time to the cure of Type 1 diabetes. Money is not the main roadblock for our cure. At the same time we have all been moved many times over by the stories of newly diagnosed families and children tired of this disease with a lifetime yet to face. I am also constantly amazed at the lack of services from other health organizations and the lack of support from many schools. We are truly blessed by the services of Sutter and mainly the services of Dr. Prakasam. With all of that said, I am proud to announce the formation of ""Targeting Type 1"" for Juvenile Diabetes. Our goals are threefold: a cure, support for the families and children, and education about Type 1 diabetes. I won't go into all of our plans here but we will be having a public informational meeting in February and all of you are invited to attend. I hope you will!! We will also be holding our first fundraiser in May. The evening is all about ""Our Childrens' Hero"" and will be honoring our very own Dr. Prakasam and his new Diabetes Center. I will post more later about our developments. In the meantime, we would like very much to show a video at the fundraiser chronicalling a day in the life of a Type 1 diabetic/family that is paralleled with a day in the life of Dr. Prakasam. We currently have no contacts that could help us with the video and are hoping someone out there has an idea for us. We don't have much in the way of money but would like to work out a way to make this a reality. Please feel free to e-mail or call me with any questions or ideas for our group or this fundraiser. We would appreciate your help!! Brenda Pieper 916-771-3374 sbpieper@earthlink.net","sackid-yahoo-groups","Fri Jan 23, 2004 06:12 AM" ,"Re: Exciting news for all of us!! This is long!","GOOD JOB BRENDA!!!! I will call you about the video, I think I can help or know someone who can if it needs to be a professional job. In light and love, Carol ","sackid-yahoo-groups","Fri Jan 23, 2004 10:41 PM" ," Re: Digest Number 203","Hi Katie, I got the cable pretty quick because I called them and said I had sent in the card and could they send it right away. I guess I am not a very patient person. I happpened to get a very pleasant young woman with diabetes on the phone who shipped me one and was then going to intercept the card. I don't think this is their standard policy but it never hurts to try. She also suggested to me that I could purchase the cable with 2day shipment if I really needed it fast and then the return the cable they would eventually ship me from the card. I opted to wait for the regular mail. I felt I needed the cable because I am not that great at keeping written records since I got used to downloading her previous meter. In light and love, Carol","sackid-yahoo-groups","Fri Jan 23, 2004 10:49 PM" ,"RE: Digest Number 204","Brenda, This sounds great!! Please keep us all updated so we can attend the meetings! Keep up the good work. Thank you!!!","sackid-yahoo-groups","Sat Jan 24, 2004 12:27 AM" ,"Targeting Type 1 meeting"," We have a date for our first open meeting and it is on February 18 at 6:30 pm!! We are excited! It will be in the #4 auditorium/classroom at Buhler Building(Cancer Center). We will fill you in on our mission statement and our initial plans for the programs we will be starting and supporting. There will also be more information regarding our dinner and benefit for Dr. Prakasam and the new center. If you think you can attend, please let me know so we can get an idea of how many to plan for. If you have to decide at the last minute, that is fine! We welcome everyone, all the time. Boy, 6 months ago I was planning the picnic and now this... it all feels so good! Hope to hear from all of you! Brenda","sackid-yahoo-groups","Sat Jan 24, 2004 08:03 AM" ,"Re: Digest Number 205","Hello All: We haven't been on for quite a few months. We are a family of 6, Zachary being the youngest child @ 6 years and on the pump since June. We will do our best to attend the meeting in February, sounds great! Cindi Now","sackid-yahoo-groups","Sat Jan 24, 2004 04:31 PM" ,"Re: Digest Number 205"," Brenda, Our names are David, Laurie, Annie and Hayden Kee. Hayden, was diagnosed with Type I Diabetes just about 12 weeks ago. We have only just begun to see Dr. Prakasam. Your vision for 'Targeting Type I' seems like a great idea. I wonder if you could be more specific regarding your needs for the video. Have your needs for assistance with your video been met? If not, Is it already written and shot? Do you simply need some post production work done on it? I have some close contacts who might be able to help out, depending on the scope of the balance of work. Please let us know We will look forward to the meeting in February! David, et.al.","sackid-yahoo-groups","Sun Jan 25, 2004 12:28 AM" ,"Re: Targeting Type 1 meeting","Hi Brenda, I can attend the meeting on Feb 18th and you right, this is exciting. In light and love, Carol ","sackid-yahoo-groups","Mon Jan 26, 2004 11:29 PM" ,"Re: Digest Number 207","The Demas family will attend the meeting on the 18th. There will be three of us. Thanks, Helen Demas","sackid-yahoo-groups","Tue Jan 27, 2004 09:39 PM" ,"Freestyle Flash Meter","We recently purchased the new Freestyle Flash meter for my son, Justin. I was disappointed to discover that the cable was not in the box. I guess I didn't read the outside very carefully, or I just wasn't thinking, duh...like it was really going to fit in that small little package with the meter! Anyway, being impatient as we are, we decided to try, just for the heck of it, to see if the meter would work with the cable from his old Freestyle meter and it does!! Not only that, the software works too!! The program recognized the new meter's serial number, took us through the steps to fill in his name and desired range, etc. and then we were able to download his numbers. Just wanted to offer an alternative for those who may still be waiting for the new cable!! -Kim","sackid-yahoo-groups","Tue Jan 27, 2004 10:02 PM" ,"Re: Digest Number 207","hello brenda- i'm the mother of almost 5 year old, ernie, who was dx on 7/27/03. i will be in attendance at the ""targeting type 1 diabetes"" meeting. silvia salazar","sackid-yahoo-groups","Wed Jan 28, 2004 02:38 AM" ,"RE: Digest Number 206","Hello All, In regards to the video, please feel free to contact Susan Lopez-Mele the Media/Marketing Specialist for the Diabetes Prevention and Control Program (DPCP) for advice and possible leads on getting the project done. You can reach her at smele@dhs.ca.gov or by phone (916) 552-9942. I have already told her to expect the contact. Depending on what is included in the video and how applicable it is to kids/families throughout California, DPCP may be able to sponsor it. Also, there is a state-wide organization called the Diabetes Coalition of California (DCC) which is closely affiliated with DPCP. DCC works on advocacy, guidelines, professional education, and leadership issues regarding diabetes. DCC is currently expanding its efforts in order to meet the increasing needs of California. The current membership of DCC includes physicians, nurses, educators, public health officials, pharmacists, dietitians and other concerned professionals. What is lacking is concerned parents, attorneys, accountants, bookkeepers, administrative volunteers, etc. Unlike the ADA which is concerned with national issues, DCC is more ""local"" being concerned with issues affecting California. If you would like an application to join (there are no membership dues) please contact Sarah Enloe at senloe@dhs.ca.gov. Mark Mark Shannon, PA-CDE Interim Program Chief Diabetes Prevention and Control Program DHS mshannon@dhs.ca.gov ","sackid-yahoo-groups","Wed Jan 28, 2004 03:46 AM" ,"RE: Digest Number 208","Hi Brenda, I will be attending the meeting of Feb.18th as far as I know. We live in Yuba City so I will do what I can on a school night. Marresa's pediatrician is working on getting a grant through Sutter North Medical Foundation here in Yuba City, so it won't be such a drive for us. I believe it is the same kind of meeting. If they approve the grant anyone who lives in Yuba City would benefit from this. Please try to spread the word because if it does become a reality they need people there, so it isn't a grant wasted. I know they need this in our area very much. Especially the schools...I will keep you updated when I learn of any new information. Thanks, Ouida ","sackid-yahoo-groups","Wed Jan 28, 2004 08:24 PM" ,"Open Meeting on February 18th","Hello Everyone, Can someone please let me know what town the meeting is going to be held in? I am always ready to learn more. We live in Oroville, and I was thinking if this is going to be held in Sacramento then thats not very far for me to drive. Any info will be greatful. Hope all is well with everyone. Thanks. Laura Jessica's mom ","sackid-yahoo-groups","Thu Jan 29, 2004 01:24 AM" ,"Re: Open Meeting on February 18th","Thank you, everyone, for the RSVP's! They are very helpful! The Cancer Center is at Sutter Memorial Hospital by the PENS clinic. I am trying to get exact directions posted as soon as I can but that should help many of you. It is a great central location and I am so thrilled to hear from so many of you willing to take this time out of your day to attend our meeting! It will be worth it! See you soon and you will hear more from me very soon! Brenda ","sackid-yahoo-groups","Thu Jan 29, 2004 03:19 AM" ," RE: Digest Number 208"," > Hello Everyone! It snowed here on Monday, but we were in Sacramento! Eva has been ""greenlighted"" for her pump. She actually hit a 543 (BG) while at PENS and Ean hit a 41! Lots of fun traveling 600 miles with two diabetic kids. They were really pretty great, considering. At least it wasn't snowing in the mountains on the way home. Ean had to come home from school today . He was high 478 on fasting (!) and we bolused and he went to school and called and was HI so I went down and we changed his site but he was spilling small ketones so I brought him home. That's a lot of homework for a 2nd grader! Anyway- just thought I would catch up. I really look forward to hearing how everyone is doing.- Cyndy Heintz","sackid-yahoo-groups","Thu Jan 29, 2004 07:28 AM" ,"RE: Digest Number 208","Can someone email me the meeting place for Feb 18. I cant seem to find the address o where it is being held and miss many-many posts since I can only sign on about once or sometimes twice per week. s for one year. My daughter is 11 and has been on the pump since November of last year. She has been a patient of Dr. P for one year now and has had Diabetes for one year. Thank you Alanna","sackid-yahoo-groups","Thu Jan 29, 2004 06:47 AM" ,"RE: Digest Number 209","The PENS group has recently recommended expanding the area (stomach) that my daughter, Jaclyn gets her insulin injections, reducing the possibility of creating a swollen/puffy condition. Unfortunately the injections in these new areas are extremely painful. Although she is going to be transitioning to the pump in a couple of months, and for the most part this problem will no longer exist, I was wondering if anyone could recommend a topical-anesthetic (OTC) that she could use until then. Thanks, Ted","sackid-yahoo-groups","Thu Jan 29, 2004 11:40 PM" ,"RE: Digest Number 209","Hi Ted, We looked into numbing creams once and found a product called EMLA. It is a topical analgesic and requires a prescription. It has to be applied and sit on the site where you want to inject for a period of time before you remove it and then give the shot. Any pharmacy will have it. We never actually tried it on Talia because she didn't want to add another step to the shot process; what did do, however, was switch her to an insulin pen for most of her shots and only gave her one needle injection a day of Lantus. The pen was alot less painful for her and she could even use it on her backside without pain. There are pens with Humalog or Novolog. Another thing that Talia discovered that helped reduce the pain was she would pinch the chunk of skin where she was going to inject pretty hard, jab the needle in quickly, and then let the skin go to push the plunger. Both the hard pinch and the quick insertion seemed to help because they gave her something else to think about and they spread out the nerve impulses. You are correct about pumping. Talias on a pump and it is so much better to only poke herself every 2 or 3 days instead of multiple times in one day. Good luck to you and your daughter. In light and love, Carol ","sackid-yahoo-groups","Fri Jan 30, 2004 12:05 AM" ,"RE: Digest Number 209","I will try to attend the meeting, it will probably just be me, but if she is free(teenage dtr's have very busy schedules!!!) are our children invited(15 yr old).. thanks, Kathleen Martin","sackid-yahoo-groups","Fri Jan 30, 2004 08:33 PM" ," topical anesthetic","Hi Ted- have you tried ""ELA-Max""? It is over-the-counter and is available through Ferndale laboratories Inc. It is a cream that is 4% lidocaine and is fairly inexpensive.I have an NDC # of 0496-0823-05 I don't know if this helps but I am sure they have a website. I am sorry I don't have a phone number but your pharmacist should be able to order it for you. Hope this helps. - Cyndy Heintz","sackid-yahoo-groups","Sat Jan 31, 2004 12:50 AM" ,"www.collegeboard.com - for children in highschool","This is a nice website for children looking into college in the next few years. Helps you to look at different colleges, dates for SATs PSATs etc. Free and informative","sackid-yahoo-groups","Sat Jan 31, 2004 10:33 PM" ,"Re: Digest Number 211","please change my e-mail address to:rabbit2759@sbcglobel.net Thank You,","sackid-yahoo-groups","Sun Feb 1, 2004 05:10 AM" ," Feb. 18th meeting -SUTTER GENERAL","Sorry to all!! The Cancer Center is across the street from Sutter General Hospital at 2800 L Street with parking at L and 30th. We will be in Classroom #4 and the meeting starts at 6:30. There will be muffins and coffee/water. We WILL have the carb counts on muffins thanks to Tara!! She is donating the muffins on behalf of Mimi's Cafe. Thank you again, Tara! Here is the text only version of our invitation. See you all there!!!!! Introducing Targeting Type 1 To promote a cure, support education and help children and their families cope with Type 1 Juvenile Diabetes. Targeting a Cure – Working with researchers such as Dr. Andrew Bluestone of UCSF. Targeting Support – Teen support groups, family events and networking, parent and child support available from initial diagnosis. Targeting Education – Seminars available for family members, friends, childcare workers and coaches. Targeting the Future – We are supporting the Sutter Children's Diabetes Center for the lifetime needs of children with diabetes. This is your chance to make a difference for your child and other children in our community that are living with Type 1 Diabetes! Please join us for an Informational Meeting on Wednesday, February 18 at 6:30 p.m. #4 classroom of the Buhler Cancer Center, 2800 L Street across the street from Sutter General Hospital. Parking available at L and 30th Streets Please R.S.V.P. at (916)682-5199 or sbpieper@earthlink.net ","sackid-yahoo-groups","Mon Feb 2, 2004 09:15 AM" ,"On Line Diabetes Management Tool Study","Dr. Prakasam and his team have discussed a goal of starting an on- line diabetes management tool that would go beyond this current forum and allow us to actually interface with our professionals on line. There is a study on line that shows that this is a very effective way of improving control. Check out the study results at http://care.diabetesjournals.org/cgi/content/full/27/2/478 Jim Stone Dad of Andrew, Age 7, Dx'd at 20 Months, Cozmo Pumper Modesto, CA","sackid-yahoo-groups","Mon Feb 2, 2004 10:00 PM" ," Re: Digest Number 212","More achievements by our incredible kids--My 19-year-old daughter Julia, diagnosed 3 years ago next week, ""celebrated"" her anniversary by doing her third 5K run since diagnosis. She's a sophomore at UCSB, runs 4 times per week, lifts weights twice a week and fits in a little swimming, walking and biking, and looks terrific. (At the time of diagnosis she was rowing 5 days per week, and continued that for another year.) She did her first post-diagnosis run at the Davis Turkey Trot in 2001 with her dad Alan. She made it, but it wasn't the most comfortable experience due to sugar issues, etc. When she told us she was going to do another Turkey Trot at UCSB her freshman year (9 mos. after going on the pump), we were a bit apprehensive, hoping that she told enough friends that she was going to do it, and that there would be a safe place to leave her kit, etc. That run worked out GREAT, and the bonus was after the event. A young woman who had also completed the run came up to her, asked her if that was an insulin pump at her waist. When told that it was, she said, ""I have diabetes and a pump, too."" That was the start of a friendship with another young woman (same age, year at UCSB) who is also doing all she can to take care of herself. Our kids are amazing. Lyra Halprin, Davis","sackid-yahoo-groups","Mon Feb 2, 2004 11:17 PM" ,"Re: Digest Number 213","So wonderful to hear about Julia. These testimonies are very encouraging and empowering. Helen Demas","sackid-yahoo-groups","Tue Feb 3, 2004 01:11 AM" ," File - DID YOU DO IT?"," Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness. ","sackid-yahoo-groups","Tue Feb 3, 2004 11:14 PM" ,"File – DISCLAIMER","Please remember that this list serv is created to link all families who have diabetes and is NOT A MEDICAL ADVICE OR SUPPORT SERVICE. Dr. Prakasam or others who share this list serv are not responsible for any message, advice or comments posted on this group. Dr. Prakasam or any of the others (who are in the medical profession and are on the group) do not take any responsibility for any medical needs, concerns or requests posted on this group page. Dr. Prakasam or others will not respond to any medical questions or 'need for help' posted on this group. Please use caution when you let your children use this group. It is entirely your responsibility to decide whether you or your child want to stay in the group or leave the group. PLEASE SUPERVISE YOUR CHILDREN AND THEIR EMAIL INTERACTION AS YOU WOULD NORMALLY DO IN ANY EMAIL/GROUP - Please be aware that anything you post on this group is being read by all the members who might be sharing it with others as well. It is important to remember that this not an advice group. If you want advice regarding your medical care, you need to talk to your medical care providers. If you have any worries, concerns, doubts or anything negative - PLEASE UNSUBSCRIBE YOURSELF AND YOUR FAMILY NOW. Thanks for understanding - Please help to develop and a strong companionship and support service and use the service intelligently. This is a legal disclaimer","sackid-yahoo-groups","Tue Feb 3, 2004 11:15 PM" ,"File - How to register TUTORIAL - Sac kid diabetes.doc","File : How to register TUTORIAL - Sac kid diabetes.doc Description : This file gives you all details regarding enrolling, unsubscribing and other IT stuff","sackid-yahoo-groups","Tue Feb 3, 2004 11:15 PM" ,"File - Appointments and Prescription Refills","This is an automatic reminder once every month to 1. Check your supplies 2. Throw away expired supplies 3. Make appointments to see your Doctor and your TEAM UNFORTUNATELY, AT THIS POINT OF TIME DR. PRAKASAM DOES NOT ACCEPT EMAIL CONSULTATIONS. WE CERTAINLY THINK THAT IT WILL CHANGE IN FUTURE. ","sackid-yahoo-groups","Tue Feb 3, 2004 11:15 PM" ," File - Good Websites"," Please make sure that you check the websites that have been posted in the ""LINKS"" section. A wide variety of websites have been posted. PLEASE POST THE ONES YOU THINK WILL BE GOOD AND WE WILL REVIEW THEM AS WELL HOW TO GO TO THE WEBSITE AND SEE THE LINKS: How to TUTORIAL: 2 PARTS: PART A If you are already registered with the site: 1st Step: Go to http://groups.yahoo.com/ 2nd Step: Left Top Corner – Will have a sign in: Click on that 3rd Step: But in your User ID and password and click enter 4th Step: You will go to the Yahoo Group page: Left corner you will see the group name (SACKIDDIABETES) – Click on that and you will go to the site Alternatively: Again if you are Already enrolled: Go to: http://groups.yahoo.com/group/SacKidDiabetes/ And sign in with your yahoo ID. If you have just been invited or added on to the site: You will get few emails in the beginning: Some of the files which the moderator wants you to see when you join (eg. Did you do it? Etc) Click on the email that says: Welcome to the SacKidDiabetes group. To send email to ALL the group members: Just TO START SENDING messages to members of this group simply send email to SacKidDiabetes@yahoogroups.com TO GET OFF THE LIST: unsubscribe by replying to this message, or by sending an email to SacKidDiabetes-unsubscribe@yahoogroups.com PART B: TO ACTUALLY GO TO THE WEBSITE: You have to have a Yahoo email ID, even though you can use your own email. At the bottom of the same email you will see link: http://groups.yahoo.com/group/SacKidDiabetes either click on it or type that address to go to that site. If you already have a yahoo ID you can just sign in. Otherwise you will have to click on “register” You will be taken to a page to register. Create a yahoo ID and fill the whole page up: It is self-explanatory. MAKE SURE THAT YOU PUT IN YOUR ALTERNATE EMAIL AND THE EMAIL YOU WANT TO USE. Otherwise all your emails will go to the yahoo email address Once you have completed, the bottom of the page will show a word – which you have to enter into the rectangular space. It is complete now: Just make sure you remember your Yahoo ID and password Now you get the next page which will give your ID and a yahoo email if you need one. Go to the bottom of that page and click on “continue to yahoo” Now you will go to the SacKidDiabetes page: Click on the link, which says: (Already receiving group email?) It will take you to a next page that will show your original email ID: Click on the part that says, “verify” after your email ID. It will take you to another page that will ask for your Yahoo ID and password. Once you enter that it will take you to another page that will verify your account. Just follow the instructions in that page which will ask you to go and check your original email box: In your email box you will see two emails: Welcome to yahoo and Registration Confirmation. Open the email, which says “registration confirmation” you, will see your Yahoo ID and your email address. Click on to verify your email address. You will go to a page which will say: “Checking for membership” Click next to your email address that says: “ Get Web Access “ Now it takes you to the next page that will let you manage your group behavior. Fill this page up: Click on save changes. You are now officially allowed to go into the WEB PAGE!! – REMEMBER THIS IS ALL FOR YOUR OWN PRIVACY","sackid-yahoo-groups","Tue Feb 3, 2004 11:15 PM" ," File - Group Information","Please remember that this group discussion is an important tool for diabetes self management. But it is important that we do not spread any negativity across to any parent, knowingly or unknowingly. Some simple comments might hurt a child or a parent. THIS IS TO KEEP EVERYONE HAPPY and SECURE. Also learn to use the website effectively. For example instead of getting multiple emails you can choose to receive one email a day - with all the mails bundled into one. Ultimately, our goal is to create different subgroups among the children and families to address: Vacation, school, college, scholarships, cooking etc. This group should become the most powerful support group in the country. I am sure we can reach there AND we will reach there ","sackid-yahoo-groups","Tue Feb 3, 2004 11:15 PM" ," RE: Digest Number 214"," Wow! What a role model Julia is for younger kids with diabetes! This is so inspiring to me! Also Julia meeting the other young woman with diabetes must have been a great feeling for her! This is great! Thanks for sharing that with us!","sackid-yahoo-groups","Wed Feb 4, 2004 02:19 AM" ,"message from Yahoo regarding virus - Please read","Dear Yahoo! Groups Members, Due to a recent outbreak of computer viruses being transmitted via email messages on the internet, Yahoo! Groups is experiencing delays in delivering group messages. To improve performance, and to help reduce the spread of viruses to our users, Yahoo! Groups has had to temporarily reject some messages. Based on an advisory posted by a leading anti-virus company, Groups will temporarily reject messages with the following subject lines: test hi hello Mail Delivery System Mail Transaction Failed Server Report Status Error If you have attempted to post a message to Yahoo! Groups and have received a rejection notice with a link to this page, your computer may have been infected. If you are confident that your computer is not infected but your message was rejected, please try posting a new message with a subject line which is different than those listed above. We can assure you that this is only a temporary measure and hope to restore message delivery to normal as soon as possible. The Yahoo! Groups Team","sackid-yahoo-groups","Wed Feb 4, 2004 08:03 PM" ,"Re: Digest Number 215","I'm so glad it made parents/kids feel good to hear about Julia's success. She struggles like everyone else, but my goodness her achievements/successes far out number the icky stuff.(And she actually has done four 5Ks since diagnosis! mom error...) Yes, it was very wonderful for Julia to meet her UCSB running friend at the first 5K down there. (She also stays in touch with a high school friend who has type 1 and is at UCSB--those connections really help!) One of the most important things for us at the time of her diagnosis and since has been to talk to, email and otherwise communicate with other kids with type 1 (and their incredible families) who have a *positive* outlook. I credit reading brothers Spike and Bo Loy's book ""Getting a Grip on Diabetes"" as being a pivotal experience for us. The two boys are pictured on the cover holding their surfboards--that image alone is such a positive one for our kids. The book is published by the ADA, but is available if you ask for it at any bookstore. (They have revised it to update insulin types and pump info--ADA plans to publish updated version this summer, I think.) Their mom Virginia Nasmyth Loy also has a book out (came out after the boys') called ""Real Life Parenting of Kids with Diabetes,"" which is awesome. We found them via email (family home is in Ojai, just below Santa Barbara), and have become friends with the family. What an inspiring crowd! Spike graduated from Stanford 18 months ago, and Bo is a junior at USC. They've also written a book (not yet out) on Tips for Kids, and one on going on the pump (due out soon). Those kids do EVERYTHING. What a blessing it has been to see that and hear that over and over again--our kids can do what they want. As you all know, a supportive family really really helps. Also, we met a UC Davis college student with type 1 shortly after Julia was diagnosed. Her name is Mary Costello, and she's become part of our family, as far as we're concerned. She graduated last June and was a varsity UCD water polo player, and captain of the UCD club water polo team for several years. She is a beautiful, strong, kind, and unbelievably powerful young woman who has been an unbelievable ROLE MODEL! She has been a diabetes summer camp counselor for years (inspired Julia to do it and love it), and is shifting from her undergraduate degree economics focus to applying to nursing school so she can work with kids/families and spread her amazing energy. (She's also been considering med school.) As I'm sure you all know, our kids also like to NOT think about diabetes sometimes, too, and that's where we can help them. I try to stay on top of the research developments, and my husband has taken the lead on wading through the insurance morass. We both encourage Julia to talk to us about diabetes whenever she wants/needs to, but try not to make it the focus of our phone calls and visits. As Dr. Sheikholislam (Dr. P's first partner, now retired from diabetes practice) told us, ""You make diabetes part of your life, not your life part of diabetes,"" (or something like that!). With docs like Dr. S. and Dr. P, we are lucky. Stay healthy, y'all, and enjoy the sun today! Lyra","sackid-yahoo-groups","Thu Feb 5, 2004 01:02 AM" ,"Re: Digest Number 215","Hi Lyra and Julia, As a runner and a mother of a daughter with diabetes, your post has given me renewed confidence in Talia's future. Sometimes fear of the unknown can dim my vision a little bit and you have added a very bright glow. Thanks for taking the time to give me a boost. In light and love, Carol ","sackid-yahoo-groups","Thu Feb 5, 2004 09:58 PM" ,"Re: Digest Number 216"," Carol, Your strength, persistence and wonderful spirit have brightened my day many times. Thank YOU for you many positive contributions to this list. How great that you're a runner, too. I swim with a masters program, and just watch my family run;>) Kids really benefit from watching us make an effort to stay healthy. I love the posts about the families who enjoy snow sports; we enjoy them, too. As a former beach town resident, I wondered what it would be like to live in the Valley. Well, ""when in Rome..."" --we love waterskiing and wakeboarding! Whatever gets you out there is great for the body and soul. The Loy family books have encouraged us a lot, too. Talk about an active bunch! Best wishes, Lyra ","sackid-yahoo-groups","Thu Feb 5, 2004 07:55 PM" ,"Achievements","Hi All, Talia had her annual blood work done today with our favorite phlebotomist. I call and make sure she is working before we go to the lab because she is so good at what she does and Talia really likes her. Today, Talia struck up a conversation with her about the size of the needle she was using compared to the needle Talia uses when she puts in her infusion sets. The phlebotomist was very interested in Talia's comments and Talia showed her her site and talked about what it feels like to put a new one on. She also showed her new pump off and her pump pocket. It was the first time I've seen Talia initiate a discussion on her own and show off her site without me asking her to. I stayed out of the conversation and it ended with Talia saying it felt about the same to have her blood drawn as it did to have her site put it in. That gave me something to compare it to as I just gave blood recently. I admire Talia's strength and the composure it takes to sit there so calmly and converse while she has her blood drawn. My parents are arriving tomorrow for a visit. My children love them so much and are so excited that they could hardly go to bed tonight. I layed down with Talia so she could get to sleep and I fell asleep with her at 8pm. Now, I'm up at midnight posting to this site avoiding the last of the cleaning I should get done before they arrive. I know in my heart that they won't love me less if my house isn't perfectly clean when they get here but I feel a need to try to impress them at least a little. In light and love, Carol","sackid-yahoo-groups","Tue Feb 10, 2004 01:50 PM" ,"RE: Digest Number 218","Does anyone know what to do with our old insulin bottles? I don't feel right just throwing them away in the garbage. Oh, Carol that is so great about Talia. She seems comfortable with her pump doesn't she? I know what you mean when our children just sit there while their blood is being drawn so calm.....When did she cross over and decide to get the pump? Mareesa is still in the deciding mode. She is giving her injections at school now and just calls me with carb count,etc. That is a giant step for her, so I am letting her decide about when she wants the pump. I can see her body now needing so much more insulin since her honeymoon period is over. She would really benefit from it, but in her own time. I've learned....Thanks for sharing with us. Ouida ","sackid-yahoo-groups","Tue Feb 10, 2004 08:08 PM" ,"RE: Digest Number 218","It is wonderful to hear about kids feeling comfortable talking about diabetes (when they're ready). It's interesting to hear Talia's comparison of the blood work and putting in an infusion set. A friend's 10-year-old has made a huge growth in confidence and ""readiness"" in the last six months; he now puts in his own sets, checks his blood, and anything else he needs both at home and school. Big difference from last year! And, he's done a 5K and a kid triathalon in the last year! Looking forward to seeing our daughter this week. She's coming home from college to be fitted with the continuous blood glucose monitoring device for a few days; she's looking forward to the data it should give her about nighttime blood sugar, etc. Cheers, Lyra","sackid-yahoo-groups","Wed Feb 11, 2004 01:02 AM" ,"RE: Digest Number 218","Hi Ouida, I will tell you honestly that Talia didn't really decide she wanted the pump. She was only 4 years old when Doug and I decided the pump would be a good thing and we introduced the idea to her and of course she went with it because we thought it was the right thing to do. It has changed her life and our family's alot to have her pumping. We don't follow a meal plan or a meal schedule anymore and now if Talia wants to eat she just does. If it makes sense to test we do, but if it is too close to the last bolus we just cover the carbs. The biggest impact of the pump that Talia points out to people who ask about it is that she doesn't have to do alot of shots anymore, she only does 2 a week when she changes her infusion site. Talia's insulin needs go up in the winter and back down in the spring when she plays outside more. I've also noticed that about every 4 to 5 weeks her insulin needs go down for a period of time and then back up again. I have a second basal rate programmed into her pump and when I notice it happening I switch her over to the lower basal for a few days until her numbers start going up and then I switch back to her regular one. Have you noticed this with Maressa? In light and love, Carol ","sackid-yahoo-groups","Wed Feb 11, 2004 10:41 AM" ," Re: Digest Number 218","Hi Ouida, I forgot to mention before, I recycle the old insulin bottles. I spoke to our local recycling center manager and he said the rubber stopper and metal ring are sorted out when they crush the bottles for reuse. He did ask that the bottles be empty before placing them in the bins though. In light and love, Carol ","sackid-yahoo-groups","Wed Feb 11, 2004 10:49 AM" ,"Hello!","I want to say ""hello"" to the parents that I have met in the last couple of days! My thoughts are with you all, Heather, Virginia and ""Anthony's Parents""! I am so touched by your stories and I remember so clearly how these first few months were for us. Please know that we are all here for you and that your children are part of a special group of courageous, strong and persevering children. And they are all the children of parents just like you. Thank you for sharing a bit of your life with me. I look forward to seeing you all in the future! Brenda","sackid-yahoo-groups","Wed Feb 11, 2004 11:02 AM" ,"Targeting Type 1","Just a reminder that our meeting is in a week! I can't wait! Thank you for those that have let me know that they are coming. If you are still considering, I hope you choose to join us. Here are the details again! WEDNESDAY, FEBRUARY 18 AT 6:30PM #4 CLASSROOM OF THE CANCER CENTER, 2800 L STREET (ACROSS THE STREET FROM SUTTER GENERAL HOSPITAL. PARKING SHOULD BE AVAILABLE AT L AND 30TH STREETS. PLEASE CALL BRENDA AT 771-3374 OR BONNIE AT 682-5199 OR RSVP AT SBPIEPER@EARTHLINK.NET We are targeting a cure, targeting support, targeting education and targeting our children's future. Please join us and help us make a real difference in the lives of the children in our community! Thank you, Brenda Pieper President, Targeting Type 1","sackid-yahoo-groups","Wed Feb 11, 2004 11:07 AM" ,"Re: Digest Number 219","Folks, Thought this might be of interest--resources for kids with diabetes. This was sent to a friend who's a writer/editor at the California Assoc. of School Boards; she may use some of this info in their magazine. Cheers, Lyra -----Original Message----- From: NDEP NDEP [mailto:NDEP@hagersharp.com] Sent: Wednesday, February 11, 2004 11:19 AM To: NDEP NDEP Subject: Resources for children with diabetes Dear Editor: Current national estimates indicate that about 206,000 young people under 20 years of age have diabetes, up from 151,000 in 2002. Diabetes must be managed 24 hours a day, 7 days a week. School personnel, health care providers, parents, and students must be educated about diabetes and work together to ensure that young people manage the disease effectively and avoid its serious complications. The National Diabetes Education Program (NDEP), jointly sponsored by the U.S. Department of Health and Human Services' National Institutes of Health and Centers for Disease Control and Prevention, is responding to the increased incidence of diabetes in children with educational materials to help school personnel, parents, and children. Following is important information for your readers about two new NDEP resources. For more information, please contact Joanne Gallivan, NDEP Director, NIH, at 301-496-3583 or Joanne_gallivan@nih.gov or Kristin Donnelly at (202) 842-3600 kdonnelly@hagersharp.com. New National Diabetes Education Program Resources Helping the Student with Diabetes Succeed: A Guide for School Personnel educates school personnel about diabetes management and helps ensure a supportive environment and equal access to educational opportunities for students with diabetes. The guide includes a diabetes primer and glossary that provide a basic understanding of the disease. There are tools and resources for implementing a team approach to diabetes management, sample diabetes medical management forms, and emergency action plans for the student's health care providers to submit essential information to the school health team. Tips for Kids with Type 2 Diabetes is a series of four (4) colorful educational handouts that provide basic information about type 2 diabetes and how to manage it to live a long and healthy life. These reproducible tip sheets were developed to meet the need for easy-to-read information about type 2 diabetes tailored for children and their parents. Topics include: ""What Is Diabetes?"" ""Be Active,"" ""Eat Healthy,"" and ""Stay at a Healthy Weight."" These resources can be downloaded from the NDEP website at www.ndep.nih.gov/diabetes/youth/youth.htm or they can be ordered by calling 1-800-438-5383. Single copies of the school guide and packets of 25 tip sheets are free. All NDEP materials may be reproduced and distributed without copyright restrictions. ","sackid-yahoo-groups","Thu Feb 12, 2004 06:22 AM" ,"Re: Digest Number 219","Hi All, We used the Helping The Student with Diabetes Succeed document this year with Talia's school. It has a very positive tone and concise yet complete information about caring for diabetes. I really appreciated the primer and the sample forms it contained. I also really liked that it upheld Talia's right to care for herself at school but it wasn't pushy or full of legal talk. I highly recommend it to everyone with a school age child. In light and love, Carol ","sackid-yahoo-groups","Thu Feb 12, 2004 11:51 AM" ," Introduction of Holli and Jessica"," Hello, Long-time message reader, first-time poster. My daughter Jessica is 13 years old. She was diagnosed in April of 2002. Jess is very active in sports including soccer, volleyball, and track. Brenda: I will be at your meeting. Carol: Could I have the name of your phlebotomist please? Jessica's annual blood test is coming up and she is quite anxious about it. Last year a nerve was struck and her arm hurt/tingled for a week. Jess has been pumping since November 2003 and has taken over almost all of her own care. I check to see if she's remembering to test and bolus at school, but the change has been liberating (for both of us). Tip for pumpers: Be prepared for a pump failure. Jessica's Minimed failed on a Friday afternoon before heading out of town on a 3 day weekend and we were unprepared to give shots again. The NPH we had was old and I couldn't remember the doses. A new perscription had to be called in and old records dug up, so now I keep an upopened bottle in the fridge and keep the old doses handy. How quickly we (I) forget. Can anyone recommend a good Pediatrician in the Roseville area? I am looking for someone with an open mind regarding alternative care. (ie Chiropractic, Herbs, Enzymes, nutrition, Homeopathic etc.) Our PPO allows us to see pretty much anyone except Kaiser doctors. I think I covered everything in one message. Thanks for your time, Holli","sackid-yahoo-groups","Fri Feb 13, 2004 10:46 PM" ,"Re: Introduction of Holli and Jessica","Hi Holli, Talia's phlebotomist is Lisa Mercada. She works at the Quest Lab in Auburn, phone 889-6100. Her hours in Auburn are Mon 7am-12:30, T,W,TH 7am-9am, but these vary so call before you go and make sure she is there. She also works at Unilab in Grass Valley and maybe at other labs that I don't know about. She's really good at what she does and she stays current on all the new equipment and techniques. If you go to her, tell her we sent you and that we say hi. In light and love, Carol ","sackid-yahoo-groups","Sat Feb 14, 2004 03:31 AM" ,"accomplishments","Hello to everyone.My name is Laurie and my daughter Michele (14 yr. ) was diagnosed about 1 & 1/2 yr. ago. I read the postings on this website everyday and am so proud of all of our children's accomplishments. I know that Dr. Prakasam designated January as the month to list our children's accomplishments, however, I am only now able to do so.We are fortunate in that Michele adjusted to managing diabetes with very few problems and my husband John and whole family of course are so very proud of her as she has not let diabetes get in her way or stop her from doing anything. In fact, we have a hard time keeping up with her ! In addition to Dr. Prakasam's request to list accomplishments I am doing so in hopes to let other parents or newly diagnosed children know that it is possible to live a normal teenage life , while managing diabetes. It would not be realistic to say that Michele does not have frustrating moments ( for example she is currently having problems with the new Quick set Plus infusion sets for the pump ) or times when she feels life has not been fair to her , however , those moments come and go rather quickly. I have found much inspiration and hope for Michele's future as I read postings such as Lyra's regarding her daughter ,Julia , who attends UCSB .I think ahead often and worry about how college life will be for Michele and then I read about how great Julia is doing and hope that Michele will continue to make smart decisions and be able to experience a healthy, normal, college life too. Meanwhile , we feel Michele is off to a great start ! Last summer after being on the pump for one month she took surfing lessons and learned to surf in San Diego. In August school began and so did soccer. She plays for a River City soccer team. ( indoor & outdoor soccer ) Fall arrived and it was switch from a soccer uniform to a semi-formal dress for the Homecoming dance. ( a total transformation from the Tom - Boy Michele ) Soon it was time for basketball season and she qualified for the Freshman Highschool team. Snow fell in the mountains and whenever possible on weekends Michele heads up to go snowboarding.She has become an serious snowboarder. Now, soccer season is beginning at El Camino Highschool so it is back into the soccer uniform. Somehow , she manages to keep top grades in all of her classes at school (including the Honors classes ) as homework still comes first in our house. Sleep-overs with girlfriends , school dances,and all of those social activities fall into place also. We feel that some of the best advice that Dr. Prakasam gave Michele from day one in the hospital was to try not to let diabetes manage your life. Instead , you manage the diabetes and that is what we believe Michele has accomplished and will continue keep it as her goal. Thanks for reading. I look forward to continue to read more about all of our children's accomplishments ! Laurie","sackid-yahoo-groups","Sat Feb 14, 2004 04:02 AM" ," RE: Digest Number 221"," Laura, your daughter Michelle sounds like a very ambitious young lady! It gives me such hope to hear of such accomplishments, as my daughter is almost 9 and has so much life ahead of her. Mareesa has now taken over her care at school!!! She calls me with carb counts we go over how many units she will give herself with her Novolog Pen and the nurse and I verify everything before I hang up. I am so proud of her!! I also got a wonderful compliment from a parent in her class yesterday. She told me that Mareesa had a great personality, was very confident, and thought she carried herself very well!! She is only in 3rd grade!!! We all worry about how this disease affects our children and their self esteem, but after I heard that, I know she is just fine! Like Dr. P says don't let the disease take over your life!! Our children are so amazing aren't they!!!! Ouida","sackid-yahoo-groups","Sat Feb 14, 2004 09:43 PM" ,"File - DID YOU DO IT?"," Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness. ","sackid-yahoo-groups","Mon Feb 16, 2004 02:29 AM" ," Targeting Type I","Hi All, I attended the first meeting of the new diabetes support group, Targeting Type I. This groups mission is to promote a cure, support education and help children and their families cope with Type I diabetes in our community. It was an inspiring meeting to say the least. I met several people in person that I have only known before via this website. I also met one woman who helped me cope during the first couple of months that Talia was diagnosed, thanks Lyra!!! Dr Prakasam and Lisa Prahl both attended and spoke. Dr P's overwhelming optimism is always inspiring and Lisa's straight forward, articulate approach gives me confidence to do what I need to do to care for Talia. We have been speaking of our children's accomplishments lately and I would like to acknowledge the people who are starting this group. Brenda, Nancy, Duane, Ann, Bonnie, Stacey, and Joni, you are an inspiration to us all and your love, energy, and enthusiasm supports all of us parents and makes me realize what we as parents can accomplish when we work together. Thank you so much for starting this group. In light and love, Carol","sackid-yahoo-groups","Sat Feb 21, 2004 01:12 PM" ,"RE: Digest Number 224","I really wanted to come to the meeting in Sac. but was unable to attend due to me having bronchitis!!! I hope I can attend the next one and maybe the Yuba City one will have started. It is a little difficult for me on a school night. My husband doesn't even get home until 6:30 nightly. It sounds like it went very well from Carol's e-mail. Sorry I missed everyone.... Ouida","sackid-yahoo-groups","Sat Feb 21, 2004 09:58 PM" ," Targeting Type 1","Wow! Thank you for your letter, Carol! I was so happy with the way that the meeting went on Wednesday night! There are a few ""thank you's"" on my list: To everyone that came I want to say ""thank you"" for taking the time out of your lives to see what we are all about! Your feedback has been inspiring and it has confirmed for us that we will be meeting the needs of the children. I can't wait for all of you to see what we have planned!! I want to thank Capitol Garage Coffee Company for donating our coffee at a moments notice and for Tara at Mimi's Cafe for the muffins (they were awesome!). Sorry we didn't see you, Tara! The children would have mobbed you! Thank you to Dr. Prakasam, Lisa, Linda and any other professionals that I didn't have a chance to meet. I know that you have all spent a long day taking care of our children. I can't tell you how much we appreciated you taking your evening, too! Our discussions with all of you have helped direct our organization and I just know that, besides your heartfelt support, you will be instrumental in guiding us in future developement. An extra thank you to Lisa and Dr. Prakasam for telling it like it is. I am sure that many people wonder if funds are diluted everytime a new non-profit is started. We know that we are providing services that are needed as well as supporting research that is not being duplicated, but hearing from both of you about the necessity of our group was so important. Targeting Type 1 is just getting started and we are so happy with the results of our first meeting. If anyone missed it and would like to attend, I will post the dates of our future meetings at Kaiser and at UCDavis. Hopefully, you can catch us there! We will also be meeting in Modesto and either Yuba City or Chico (or both!) very soon. We can do nothing without volunteers to support our events. Please send us your volunteer forms and let everyone know about Targeting Type 1. This group was formed by the families and for the families and we need to accomplish our goals together. With sincerest thanks to everyone, Brenda Pieper President, Targeting Type 1","sackid-yahoo-groups","Sat Feb 21, 2004 11:21 PM" ,"RE: Digest Number 224","I am so sorry that you couldn't come, Ouida! I was so looking forward to meeting you. One of the highlights of the night was putting faces to names. We are definitely heading up to your area. We are lining up our invitations for meetings and would love to add Yuba City and/or Chico to the list. I know how you feel, I was sick all weekend before the meeting and didn't know if the coughing attacks would even let me speak. But, as usual, God came through and I made the entire presentation without coughing!!! I was so thankful! Take care of yourself, Brenda","sackid-yahoo-groups","Sat Feb 21, 2004 11:25 PM" ,"Re: Digest Number 225","Brenda, Please give us more information about the ""Volunteer Forms"" you mentioned in this email. We are up in Pollock Pines and have late work schedules too, so we were unable to make the Wed. mtg. We're glad to hear a little about it from the emails being posted. What can we do in our area to help out? Would love to know. Thanks so much for everything that each and every person does to enrich the lives of our youngsters. Our united efforts today will be made evident in the quality and longevity of their future. Looking forward to more info. Cherilyn Bolton (Mom of my very awesome son, Shelby, age 11)","sackid-yahoo-groups","Mon Feb 23, 2004 07:34 AM" ,"Re: Digest Number 225"," I was sorry we didn't get to go to the meeting on Wednesday night. I run Daycare until 5:30 and my Husband doesn't get home until around 6:15. For anyone who will see the postings for the next meetings in Modesto. Please let us know. Something closer works for us. Also if there's anything that I can help with when you come to Modesto please let me know. Jenny Lexie's Mom ","sackid-yahoo-groups","Mon Feb 23, 2004 03:21 AM" ,"Re:Volunteer forms for TT1"," Hi Cherilyn! Haven't seen you since the picnic! I hope all is well! Anyone that would like to be on the volunteer call list for Targeting Type 1 and didn't get to the meeting or didn't get a signup sheet can e-mail me personally with your address and I will send you one right away. I will attach the flyer with the address but for those of you that need our address it is: Targeting Type 1 Diabetes 2443 Fair Oaks Blvd. #202 Sacramento, CA 95825 To reach me you can e-mail or call (916)771-3374 or you can call Joni Stenvick who is our fundraising coordinator at (916)716-2973 and she will be glad to answer any volunteer or fundraising questions. Thank you so much for your interest and I can't wait to see all of you again! Brenda","sackid-yahoo-groups","Mon Feb 23, 2004 08:39 PM" ,"Re: Next Targeting Type 1 meeting","Hi Jenny, I am so sorry that you missed our meeting! We are still planning for meetings at UCDavis and Kaiser and one in Modesto. You can attend any of those. I will post date and locations as soon as they are confirmed. Anyone can write me and let me know where they live and I will let you know when there is a meeting in your area. Thank you for your interest!! I am excited about the work that Targeting Type 1 will be doing and I look forward to sharing it with you! Brenda","sackid-yahoo-groups","Mon Feb 23, 2004 08:48 PM" ,"RE: Digest Number 224","Hi All, The Targeting Type 1 meeting was exciting, informative and helped me understand how it is different from a fundraising organization that focuses strictly on research, like JDRF. I very much appreciated all of you sharing your journey to TT1. I could understand also from Dr. Prakasam that there IS money from our community for several kinds of organizations--the questions that are asked during fundraising are DIFFERENT, and reach different ears with ADDITIONAL resources. As parents, allies and those with type 1, there is nothing more important to us all than curing diabetes. AND, we need help and support to function every day. Carol, you made my evening when you turned around in your chair (right in front of me!) and identified yourself as the wonderful mother of Talia. The way you appreciate folks is a gift; thank you so much. I know what it means to be helped by families who have ""been there"" and are living a good life on the other side of diagnosis. Virginia Loy in Ojai helped me and my family, as did Mary Costello, the student at UCD. I can see how Targeting Type 1 can help make those critical links. The listserv is an incredible tool. Thanks so much, Dr. P. for all your time and effort. I love the way folks from all diabetes communites around here (Kaiser, UCDMC, etc.) can benefit from our collective help. I can see how it is taking some thought to figure out how to get the help needed to continue the list without wearing you out! TT1 is a wonderful resource--thanks to all who have worked so hard to create it. Cheers on this beautiful day, Lyra","sackid-yahoo-groups","Mon Feb 23, 2004 11:28 PM" ,"RE: Digest Number 226","Hello All, Unfortunately, my son was in ICU on the day of the meeting, so I was unable to attend. I would like to talk with the organizers and interested parties at some time in the future as the program I work with is interested in diabetes support groups and may be able to offer some assistance. Mark Mark Shannon, PA-CDE Interim Program Chief Diabetes Prevention and Control Program DHS mshannon@dhs.ca.gov ","sackid-yahoo-groups","Tue Feb 24, 2004 04:48 AM" ,"RE: Digest Number 227","Mark, I hope your son is doing okay now.....Let us know. Ouida ","sackid-yahoo-groups","Tue Feb 24, 2004 08:09 PM" ,"Numbing crème"," Maybe you all know this already, but I'll post this information just in case. For those of you (mostly pumpers, I presume) who use numbing creme, a generic version of EMLA is now available. EMLA was taken off the market for some time because it didn't have a child-resistant cap, so most people switched to Ela-Max, which is over-the-counter, but fairly expensive and usually not covered by insurance (since it is over-the-counter). EMLA is back on the market, but it costs about the same as Ela-Max and most insurance has a higher copayment for ""Brand-name"" drugs such as EMLA. The good news is that a generic numbing creme, identical to EMLA, is now available. Our insurance covers the generic EMLA creme (prilocaine 2 1/2 %, Lidocaine 2 1/2 %) with a low co-payment because it is generic. We have Blue Shield HMO, and only paid $5 for two tubes that will probably last for months. We just got a perscription from our pediatrician for Andrew, but I am fairly sure that Dr. Prakasam would write one for any of you that need it. I hope this helps some. We had not been using numbing creme, but at our recent appointment with Dr. Prakasam we mentioned that Andrew had been complaining recently about his insertions hurting, and Dr. Prakasam recommended that we use the creme. It has really helped. Jim Stone Dad of Andrew, 7, dx'd at 20 months, Cozmo Pumper jstone3797@aol.com","sackid-yahoo-groups","Sat Feb 28, 2004 01:04 AM" ," File - DID YOU DO IT?","Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness. ","sackid-yahoo-groups","Mon Mar 1, 2004 03:35 AM" ,"Gluco Watch","Hi All, I just read the results from a study about the Gluco Watch that concluded that it was not a great way to catch lows on a real time basis because it's sensor isn't quite accurate enough just yet. I was wondering if anyone out there is using it and what your experience has been with it? I think it has great potential and I also think it could really help with basal testing for the pump. I thought it was also interesting to note in this study that they used a OneTouch Ultra monitor to take the control blood glucose levels. It must be an accurate monitor. We had a beautiful day of skiing today at Sugar Bowl. Nice powder and very moderate temperatures. Talia caught some air a couple of times over small jumps and she really loved it. She giggles when she lands and the rest of us laugh so much that we can hardly keep skiing. She also loves the magic carpet, it's a moving side walk that you stand on and it takes you up the hill. They use it on a very small bunny slope to teach people to ski. There were many small children on it and Talia enjoyed watching them learn and remembering when she was ""little"" and how she learned to ski. We're off to visit Dr. Prakasam tomorrow. I'm sure it will be a pleasure as it always is. In light and love, Carol","sackid-yahoo-groups","Mon Mar 1, 2004 02:38 PM" ," Re: Digest Number 230","Carol, Funny you should ask about the gluco watch today. I was just talking to a mom at Kyle's school whose son is in a music class I do, and he just completed a 6 month clinical trial for the watch at Stanford. No, it wasn't accurate she said, and her son (4th grade) didn't like wearing it since it bothered his skin evidently. Anyhow, she is interested in joining this email group perhaps, but I don't know how to assist her in officially doing that. I forwarded her the last digest since she likely knows the most about the watch, and hopefully she can get signed up with the group and reply. Katie","sackid-yahoo-groups","Tue Mar 2, 2004 07:07 AM" ,"File - Good Websites","Please make sure that you check the websites that have been posted in the ""LINKS"" section. A wide variety of websites have been posted. PLEASE POST THE ONES YOU THINK WILL BE GOOD AND WE WILL REVIEW THEM AS WELL HOW TO GO TO THE WEBSITE AND SEE THE LINKS: How to TUTORIAL: 2 PARTS: PART A If you are already registered with the site: 1st Step: Go to http://groups.yahoo.com/ 2nd Step: Left Top Corner – Will have a sign in: Click on that 3rd Step: But in your User ID and password and click enter 4th Step: You will go to the Yahoo Group page: Left corner you will see the group name (SACKIDDIABETES) – Click on that and you will go to the site Alternatively: Again if you are Already enrolled: Go to: http://groups.yahoo.com/group/SacKidDiabetes/ And sign in with your yahoo ID. If you have just been invited or added on to the site: You will get few emails in the beginning: Some of the files which the moderator wants you to see when you join (eg. Did you do it? Etc) Click on the email that says: Welcome to the SacKidDiabetes group. To send email to ALL the group members: Just TO START SENDING messages to members of this group simply send email to SacKidDiabetes@yahoogroups.com TO GET OFF THE LIST: unsubscribe by replying to this message, or by sending an email to SacKidDiabetes-unsubscribe@yahoogroups.com PART B: TO ACTUALLY GO TO THE WEBSITE: You have to have a Yahoo email ID, even though you can use your own email. At the bottom of the same email you will see link: http://groups.yahoo.com/group/SacKidDiabetes either click on it or type that address to go to that site. If you already have a yahoo ID you can just sign in. Otherwise you will have to click on “register” You will be taken to a page to register. Create a yahoo ID and fill the whole page up: It is self-explanatory. MAKE SURE THAT YOU PUT IN YOUR ALTERNATE EMAIL AND THE EMAIL YOU WANT TO USE. Otherwise all your emails will go to the yahoo email address Once you have completed, the bottom of the page will show a word – which you have to enter into the rectangular space. It is complete now: Just make sure you remember your Yahoo ID and password Now you get the next page which will give your ID and a yahoo email if you need one. Go to the bottom of that page and click on “continue to yahoo” Now you will go to the SacKidDiabetes page: Click on the link, which says: (Already receiving group email?) It will take you to a next page that will show your original email ID: Click on the part that says, “verify” after your email ID. It will take you to another page that will ask for your Yahoo ID and password. Once you enter that it will take you to another page that will verify your account. Just follow the instructions in that page which will ask you to go and check your original email box: In your email box you will see two emails: Welcome to yahoo and Registration Confirmation. Open the email, which says “registration confirmation” you, will see your Yahoo ID and your email address. Click on to verify your email address. You will go to a page which will say: “Checking for membership” Click next to your email address that says: “ Get Web Access “ Now it takes you to the next page that will let you manage your group behavior. Fill this page up: Click on save changes. You are now officially allowed to go into the WEB PAGE!! – REMEMBER THIS IS ALL FOR YOUR OWN PRIVACY ","sackid-yahoo-groups","Tue Mar 2, 2004 04:49 AM" ,"File - Appointments and Prescription Refills","This is an automatic reminder once every month to 1. Check your supplies 2. Throw away expired supplies 3. Make appointments to see your Doctor and your TEAM UNFORTUNATELY, AT THIS POINT OF TIME DR. PRAKASAM DOES NOT ACCEPT EMAIL CONSULTATIONS. WE CERTAINLY THINK THAT IT WILL CHANGE IN FUTURE. ","sackid-yahoo-groups","Tue Mar 2, 2004 04:49 AM" ,"File - Group Information","Please remember that this group discussion is an important tool for diabetes self management. But it is important that we do not spread any negativity across to any parent, knowingly or unknowingly. Some simple comments might hurt a child or a parent. THIS IS TO KEEP EVERYONE HAPPY and SECURE. Also learn to use the website effectively. For example instead of getting multiple emails you can choose to receive one email a day - with all the mails bundled into one. Ultimately, our goal is to create different subgroups among the children and families to address: Vacation, school, college, scholarships, cooking etc. This group should become the most powerful support group in the country. I am sure we can reach there AND we will reach there ","sackid-yahoo-groups","Tue Mar 2, 2004 04:49 AM" ," File – DISCLAIMER","Please remember that this list serv is created to link all families who have diabetes and is NOT A MEDICAL ADVICE OR SUPPORT SERVICE. Dr. Prakasam or others who share this list serv are not responsible for any message, advice or comments posted on this group. Dr. Prakasam or any of the others (who are in the medical profession and are on the group) do not take any responsibility for any medical needs, concerns or requests posted on this group page. Dr. Prakasam or others will not respond to any medical questions or 'need for help' posted on this group. Please use caution when you let your children use this group. It is entirely your responsibility to decide whether you or your child want to stay in the group or leave the group. PLEASE SUPERVISE YOUR CHILDREN AND THEIR EMAIL INTERACTION AS YOU WOULD NORMALLY DO IN ANY EMAIL/GROUP - Please be aware that anything you post on this group is being read by all the members who might be sharing it with others as well. It is important to remember that this not an advice group. If you want advice regarding your medical care, you need to talk to your medical care providers. If you have any worries, concerns, doubts or anything negative - PLEASE UNSUBSCRIBE YOURSELF AND YOUR FAMILY NOW. Thanks for understanding - Please help to develop and a strong companionship and support service and use the service intelligently. This is a legal disclaimer","sackid-yahoo-groups","Tue Mar 2, 2004 04:49 AM" ,"File - How to register TUTORIAL - Sac kid diabetes.doc","File : How to register TUTORIAL - Sac kid diabetes.doc Description : This file gives you all details regarding enrolling, unsubscribing and other IT stuff ","sackid-yahoo-groups","Tue Mar 2, 2004 04:49 AM" ," Re: Digest Number 230","Hi Katie, Thanks for the glucowatch info. The mom you spoke to can find out how to subscribe to this group using the tutorial in message number 733. I believe that anyone can log into the group but you can only post if you are a member (maybe the moderator can verify this for me). So, she can log onto this site and read the tutorial to sign up. If she can't log into the group, I can email her the tutorial, just let me know if you need that. In light and love, Carol ","sackid-yahoo-groups","Tue Mar 2, 2004 12:45 PM" ,"Joining this group","Hi Katie, I went to the files on this site and read the tutorial that I pointed you to earlier. Before you go to that tutorial you need to be registered on this site. How to get registered is in the file, Joining and Mail Etiquette. Email this file to your friend first, then she can use the tutorial to get on the site. Sorry I forgot this step. Again, if you need help emailing the file to her just let know and I'll try to help. In light and love, Carol","sackid-yahoo-groups","Tue Mar 2, 2004 01:06 PM" ,"Joining the group... THIS is a restricted group .. Read on","This listserv is free for any family to join, provided I can verify that they have a family member with type 1 DM. If they are in our practice it is easy. Otherwise, I need one of the existing members to post a message saying that they want this person to be in the group and include their email. This is just to prevent any unnecessary postings from people who are not directly related to diabetes care. I hope all of you agree to this. Dr. G. Prakasam ","sackid-yahoo-groups","Tue Mar 2, 2004 11:36 PM" ,"Rainbows in the Clouds","Hi All, I was up at the summit today sledding with my daughters 4th grade class. It was a beautiful day; sunny, crisp, and clear with powdery snow several feet deep. I was admiring the scenery and thinking that it was about the time that Talia would be having a snack, she was at her best friends house while I was on this trip, when one of the children asked me to look up at the clouds. The sky was a bright, deep blue and the fluffy white clouds were blowing by quickly. As the clouds crossed the sun's path, swirling rainbows were forming in them. It was a spectacular sight. I believe that it was no coincidence that I was thinking of Talia just as these rainbows were forming. She has always carried with her an inner beauty that only seems to grow stronger as she learns to care for herself and her diabetes. I knew she was ok in that moment and that she will always be ok no matter what diabetes brings to her. I am striving to have the same strength that she has. I live with some fear surrounding her diabetes and I find that I don't make good decisions based on fear. I tend to over correct high blood sugars because I fear what they will do to her body. I also tend to run her blood sugar on the edge of low based again on my fear of the effects of the highs. I am working hard to make my decisions from a better place and let my fears rest for a while. I'll let you how successful I am. In light and love, Carol ","sackid-yahoo-groups","Wed Mar 3, 2004 11:42 AM" ,"Newly Diagnosed Daughter","Hello Everyone, My name is Susan Hastings and my 6 1/2 year old daughter Lexi was just diagnosed with type 1 Diabetes on Jan. 20. Boy do I have diabetes overwhelmous. So much to learn and so much to worry about. Lexi is doing just wonderful. She's handling all this just great. Still has some breakdowns but that is to be expected. I also have 2 other daughters. Ashley is 13 and Hannah will turn 4 at the end of this month. Ashley really had a hard time with this at first but she has gotten better. My husband Mike is handling this pretty good too. He was a disaster at first. I know each one of you know exactly what we are going through. Any suggestions would be great. I was wondering if any of you know of a support group/childrens group in the Elk Grove area. I really want to get Lexi involved with other diabetic kids. Right now she is feeling very different than her friends and I want her to see that there are other kids just like her. Thank you everyone for your e-mails and support. Susan Hastings","sackid-yahoo-groups","Wed Mar 3, 2004 10:35 PM" ," Re: Digest Number 232","Thanks to Dr. P. for clarifying how those not in your practice can link to the list. I also know the 4th grade boy Katie mentioned; their family would be a great resource. They helped us adjust to the pump. Some of our other friends in Davis with diabetes would enjoy the list, too. Carol, thanks for your beautiful email. I really apprecaited your inspiration and comfort from the rainbows, and the way you shared your fear. It is a struggle for parents to balance our fears with decisions that affect our kids. For those of us with older kids, there is the fear that our children will make decisions when they're not with us that won't be healthy, whether it's not taking enough insulin or getting into a car with a driver who has been drinking. I had a dream about Julia years ago when she was facing another major physical challenge. I dreamed she was O.K., and when I woke up I Knew she would be fine, which turned out to be true. I have returned to that dream in my mind many times over the years, and it still gives me comfort. Finding peace with the help of beautiful days, loved ones, friends or other paths helps us as our children grow older and face additional challenges. Good luck to us all. xxx Lyra","sackid-yahoo-groups","Thu Mar 4, 2004 02:53 AM" ,"Re: Newly Diagnosed Daughter","Hi Susan, My name is Carol and my daughter Talia is almost 6 years old. She was diagnosed when she was 3 and is a pumper now. I have a 13 year old son and a 10 year old daughter and a wonderfully supportive husband. Diabetes overwhelmous is a well documented disease closely related to diabetes mellitus. You know you have it when you are carrying more bags with you than will fit in one of Dr Prakasam's exam rooms, or when it takes longer to carb count a meal than it did to prepare it, or when you call your insurance provider and they know you by your first name, or when you have more medical supplies in your bathroom than cosmetics. The good news is that this condition is only temporary and that someday you will be an expert on diabetes management. The other good news is that this website can be a great help along the way. You are correct in assuming that we have all been overwhelmed by diabetes. Be gentle with yourself and your family, it takes time to adjust to the routine. If you haven't visited the PENS team yet, treat yourself and set up an appointment. They are an incredible group of people who have helped many of us come out the other end of diabetes overwhelmous with good skills for keeping our children healthy. Targeting Type I is a family support group in Sacramento that is just getting started. I bet they may know of someone else with a child close to Lexi's age in your area. I'm not sure who to refer you to withing Targeting Type I so I will find out and let you know. Good luck to you and your daughter! In light and love, Carol","sackid-yahoo-groups","Thu Mar 4, 2004 12:37 PM" ," (No subject)","Hi Carol, Thank you so much for your message. I have so many fears going on right now that hearing from you has made me feel better. I really want Lexi to get on the pump but she is afraid that putting in the tube in her tummy will hurt. I can't wait to tell her Talia has one and she is around the same age. How is it working for her? Thank you for checking on the groups for me. I really appreciate it. I really want to start getting involved in type 1 diabetes functions. I want to learn as much as I can about diabetes and what to hopefully see about what is coming up in the future for these children. Thank you again and may you have a wonderful day! Susan (mom of Lexi)","sackid-yahoo-groups","Thu Mar 4, 2004 06:17 PM" ,"Re: Digest Number 233","Hi Susan, Yes, you're right. Diabetes Overwhelmous is a REAL condition. Our hearts go out to you, your family and Lexi. Our son Ian was diagnosed this last August, when he was 2 years and four months old. I remember having complete brain lock. As an example, a week after diagnosis, I called Dr. P., at 2:30 in the morning with a question about a middle of the night test. Dr. P, trying to help us to take charge--and using the Socratic method--posed a question back to me. I suddenly started crying and got very angry--and this to a hardworking doctor who's willing to return a call in the wee hours of the morning, not just to me but to any number of parents with newly diagnosed kids! Imagine how it felt to face Dr. P., for the first time at his office not too long after that phone call! I also remember very clearly, as Carol mentioned, the difficulty calculating carbs for dinner--and laughed at her words that, yes, THAT took longer than the cooking part! However, though it may sound very strange for you probably at this point, you WILL be amazed--and awed--by the strides Lexi and your family will make! Ian is stunning me right now! He's been able to tell me he's having a low several times lately--and his meter has confirmed it! Also, just last week, I finally gave into his demand to give him an empty syringe after I'd given him his insulin shot. Previously I'd give him the plunger part so he could ""give a shot"" to his Rufus Bear--but not the entire syringe with needle included (because I'd worry he was going to accidentally prick himself for goodness sake!). Well, I turned my back to do something, and when I turned around again there was my little guy, with his toddler ""pipe cleaner arms"" (as a writer called Anne Lamott calls them), standing in just his diaper, giving himself pricks in the tummy with the syringe! Not a sound came out of him! His desire to experiment, investigate, do it himself, overcame any possible fear he might have had. He also had a wonderful achievement on Tuesday. He went to his first day at preschool, and he actually went up to the teacher mid-morning and said to her, ""I'm having a high."" The teacher tested him, during the course of which she asked him ""Which finger?"" The kids had been outside playing a little, so his hands were dirty. But he said to her, ""This one. It's clean"" showing her his only clean finger out of ten! And sure enough, when the teacher tested, Ian's sugars were at 350 on the meter. She called me on the phone, and I gave her an insulin dosage for him, which she gave to him. (We're very lucky because this teacher has a younger brother with Type 1 and grew up administering shots and testing him!) I was SOOO proud of Ian! You, too, will see these wonders. I truly didn't believe these things could happen at the start! I'm realizing in just these seven months just how resilient kids are and how we really can trust them to know when they're ready for a new step--and that they can do far more than we may expect. And by golly, they'll show us! I'm also learning that I need to restrain in front of Ian some of the deeper sorrow that comes up now and then! Howard and I are finding out that a straightforward, matter of fact approach with Ian seems to work much better. Every now and then, when he DOES get frustrated, we'll say, ""Yes, that must get frustrating for you"" but we try not to let empathy turn to pity. Of course, every child is different and there's no generic approach, but mainly, I try to figure out what works best with Ian to take him to I HOPE a responsible role in ultimately taking care of himself! But yes, in private we DO have our worries! There's no guarantees of anything. But yet, I'm finding that IAN has really revealed a lot of strengths in himself over the last few months that I'm not sure I would have discovered so early if it weren't for what has happened. Also, I really bound to myself a couple of pieces of advice from Dr. P. The first: Initially, Ian had some behavior stuff going on that I was very worried about. I mentioned it to Dr. P and he said, ""That's not the disease."" That stuck with me. Since then, I feel I've been better able to address some of Ian's behavior, be stronger in my discipline, less afraid to address conflict and issues with him because of that simple statement. If I'm confused by Ian's behavior, I will test, but we try not to let Ian's diabetes be an excuse for what would normally be unacceptable behavior. Second, Dr. P, said (and it seems to be a mantra on the PENS team, too), ""Don't work your life around diabetes, but fit diabetes into your life"" or something similar to this. At the time of Ian's diagnosis, I remember feeling as if our life with Ian as we knew it was over. Pre-diagnosis, I often ran with Ian in the jogger in the early a.m. He'd have breakfast as we ran, and then we'd go for a walk, often exploring alleys in our neighborhood, and then we'd maybe end up at the park, maybe somewhere else, enjoying whatever opened up to us on that particular day. I'd say ""We're going on an Explore"" (using Winnie the Pooh's words). I used to have our food packed in the jogger, along with any extra clothing we needed. Well, another thing I'll be eternally grateful for was the nutritionist's help in the hospital. I told her about Ian having breakfast in the jogger usually--and she ENCOURAGED us to continue that and came up with some ideas for types of things he could eat for breakfast in that situation! As so, after we got over the initial shock, we have been able to resurrect much of that pre-diagnosis lifestyle, as long as I make snacks, pack everything up the night before! In the a.m., when we run now, I'll stop half way through the run, give Ian his shots, and hey presto, we're on our way again. When we're out walking afterwards, I'll give him his snack at the normal time, even while we walk (or sit on a wall or bench somewhere) and hey presto, we continue. Of course, our schedule is now becoming a little less free and easy--but NOT because of the diabetes. It's changed for the normal reasons any child's day changes as they get older--because we have a few more formal appointments in the day--such as preschool--and because Ian has some other things he likes to do! Yes, I do have to be more organized in packing things--take more equipment along--but we've kept the spirit of our pre-diagnosis life. Additionally, Susan, I did put together some guideline materials for the school on monitoring Ian's diabetes. I would be more than happy to send them to you. What I found during Diabetes Overwhelmous was that the thought of tasks like putting together materials for childcare workers just seemed overwhelming. Though there are handouts in say the Pink Panther book, I soon realized that you really have to have your own customized materials that fit your particular situation. Generic guidelines, though they're very useful for getting started, only go so far. But if you'd like a copy of ours as a starting point (though you may have yours already), I'd be very happy to send them. I relied partly on a guide someone had given me--but also worked hard to make it fit Ian's situation. I also tried to organize the information with most important stuff first, keep different subjects on different pages (say symptoms of highs and lows and how to react to different numbers separate from the contact sheet which was separate from insulin dosages and finally separate from the serving sizes and number of grams of carbs for typical preschool snacks ). My husband laminated the materials for me yesterday, and we're going to put a metal ring in the left hand corner so that the info., can be propped up somewhere in the school at the relevant page--and endure wear and tear. Well, I've probably completely overwhelmed you, but since Ian is still someone who was fairly recently diagnosed, I hoped to show you that despite all the early brainlock, shock, dismay, somehow or other life does go on. And just seven months down the road, I'm amazed at where we are now. I can see that parents of children who were diagnosed further back in time than Ian was are handling things that still seem very complicated to me--but I can now see how those parents got there. Not all at once, but bit by bit. I don't feel we've hurried. I found early on I didn't want to read too much on the listserv or look at research findings, say. It was simply enough to make food, count carbs, test, give shots! I couldn't take in much else. For instance, our changes in diet were not drastic initially. But lately, I've noticed that slowly but surely, I'm making small changes in diet as we go along--when I feel READY. For instance, we finally changed to BROWN rice, not the white we had been using. A small step, but I think I'm learning that like Ian I will make changes when I'm ready--and usually a state of readiness seems to involve for me feeling as if I'm in a rested place, when I sense an extra bit of zip--and I'm somewhat inspired! It involves having some faith in the process. I do seem to have learn about faith over and over again--but nonetheless, I feel I'm learning more of it than I ever have before. My goodness, I hope even one small part of this makes a difference for you--if you manage to make it through! All the best to you--and welcome to the listserv! Theresa McCourt","sackid-yahoo-groups","Thu Mar 4, 2004 3:38 pm " ," RE: Digest Number 233","Welcome Susan and Lexi! Yes, we all know what you're going through. My daughter is 9 and diagnosed 1 yr. ago,3 mths. We were all very overwhelmed but it is just a daily part of our routine now. It is odd to even hear myself say that today. It will and does get better. Our kids are even stronger than us at times with the disease. They can adjust to almost anything. We have definitely had our ups and downs but we keep positive mental attitudes and that seems to help. Our daughter Mareesa went to a diabetes camp last June and it was the best thing we ever did for her. She was doing her own insulin shots when we picked her up!!! Think about letting her go. Dr. P or your school nurse can set you up! You are stronger than you think right now, it will all get better. We all understand don't we? Take care and welcome to our group!! Ouida and Mareesa","sackid-yahoo-groups","Thu Mar 4, 2004 09:31 PM" ,"Re: Digest Number 233","Hi everyone-- I'm trying to get my son 7-yr-old son, Thad, on a pump but, for some reason, am having trouble doing so. I've read Pumping Insulin and met with the PENS team, but it seems to have stalled there. Maybe it's avoidance behavior on my part--easier to deal with what's already familiar. Countering that and causing anxiety is the fear that my son's health is being damaged because we can't maintain stricter control of his sugars. He's going through a phase where he eats whatever the other children around him are eating, without permission. He used to check with me and be careful, now he feels justified in indulging with the excuse, ""Trey was eating it."" It's the refusal to be different, I'm sure, and I think I could handle this better if he was on a pump, where I could compensate easier. Any thoughts and suggestions from all of you who are so much more experienced with this would be helpful. Also, he's on NPH at night. He's had Type 1 for almost two years, and I've gotten up at least once every night to check him (often I get up twice). Sometimes he starts out as high as 200 and still goes down to 50, so I don't dare *not* check him. Last night he was 261 at bedtime so I gave him half a unit of humalog to get him down around 160. I checked him at midnight to see how fast he was falling, and he was 209. For the first time, I missed getting up at 3:00 a.m., so he wasn't checked until 7:00 a.m. At that time, he was only 70, which makes me wonder if he dipped low during the wee morning hours (he has a marked dawn effect). I'm wondering if it's okay for him to go a *little* low at 2:00 or 3:00 a.m. if his body rebounds on its own by morning. Or should I continue waking him and feeding him if he hits 65 or 70 at 2:00 a.m. or 3:00 a.m. even though it then bounces him back up a little too high? Does anyone else have experience with this? Thanks for your help--Brenda Novak ","sackid-yahoo-groups","Thu Mar 4, 2004 04:51 PM" ," RE: Digest Number 233","Dear Susan, Great to hear that your daughter is adjusting to the diagnosis, along with your family--I well remember how difficult the first few months were. My son was diagnosed at age 10; our four-year anniversary is coming up in May (I can't believe it!). One thing I would definitely recommend, whole-heartedly, is diabetes camp. Not only did it help with that sense of isolation, it's also been at camp that Jake decided to take every step in diabetes care (shots in the arm instead of always the stomach, using the arm for blood draws instead of finger pricks, pens, the pump)--he was always highly resistant to any kind of change in diabetes care. Your daughter is a little younger than Jake was, but there are day camps and family camps as well. The PENS team can set you up, and there are links to camps in California through several major diabetes websites (ADA and kidswithdiabetes, as well as other). Or email me and I can tell you more about the camps we used. Good luck! --Yvette Kisor","sackid-yahoo-groups","Fri Mar 5, 2004 01:03 AM" ," RE: Digest Number 233","Hi Brenda, Talia is almost 6 and lately has been doing the same thing as your son, eating foods that she thinks I will say no to, mostly candy, and not telling me. Talia is on a pump so our solution has been that she tell her brother or sister, they come tell me, I give them a dosage, they tell her, and she gives herself a bolus to cover those carbs. It seems like a big rigamoreroll but it has kind of turned it into a game and it seems to have helped. I believe that she wants to eat sometimes without testing and that she wants to try out all the different kinds of candy like all my children have. Even before she had diabetes, I had a belief that candy had no redeeming qualities and so almost never let my children have it. My 13 year old, who does not have diabetes, tells a story about how he was afraid until he was 12 to even ask me about candy because he knew I would say no. With Talia, I am trying not add any more stress around food than is necessary, but I'm not sure how much progress I can make in just one generation. My mother has alot of issues with food and I grew up consuming sweet foods daily so I have an incredible sweet tooth which makes me a little too empathic about sweet cravings. You are correct that the pump helps in this situation because it doesn't require a shot to get her the insulin she needs. However, the situation is still a little complicated because if she eats right before a meal, then she doesn't want much for that meal and her blood sugar before the meal is really a post prandial reading and I have never had good luck trying to calculate unused boluses and interpet post prandial numbers. I am also somewhat of a perfectionist, as was pointed out to me ever so subtly by Dr Prakasam at our last visit, so it's hard for me think of her eating without testing. But I guess you have to just a live a little sometimes. As for getting on the pump, what does Thad think about it? Personally, it has been one of the best things we could have done for Talia, but she was 4 when were thinking about it so she thought it was a great idea because we thought it was a great idea. I found with the long acting insulins, lantus and NPH that I had to be alot more worried about our schedule and had to tell Talia she couldn't have extra snacks because I couldn't stand giving her extra shots. Now things like picnics, field trips, fairs, and even just simply busy days are easier to handle because we don't have to work around her schedule for meal times. Also, we carry around alot less gear and it is easier for her to eat in public because she can bolus and most people think she's sending a text message on a cell phone or checking her messages, not giving herself a dose of insulin. I do understand your comfort in dealing with what you know and not wanting to change. I think that is just human nature. As for the night time numbers, I'll be truly honest with you and say that I can't hardly stand to test Talia at 2:00am because it makes us all tired the next day. We do it very sparingly, but again the pump really helps here. If she is toward the low side at bedtime, sometimes we lower her nighttime basal to adjust and if she is a little high we can give her a very small bolus to nudge her down just a little. It is easy with the pump to compensate for the different basal insulin needs between night and day. I hope this helps you a little, good luck in thinking about a pump. There's a really good website with pump comparisons listed in the database. If you can't find it let me know and I'll send you the info. In light and love, Carol ","sackid-yahoo-groups","Fri Mar 5, 2004 02:04 PM" ,"Bedtime Highs","Hi All, Talia has been over 300 at bedtime the last 3 nights in a row so Doug and I decided to sit down and take a look at her numbers and try to figure out what to do. We'd been talking a while and posing different solutions when Doug said, ""Well, one thing I know for sure, this is like beating your head against a wall."" We both laughed so hard at this point that we gave up trying to figure it out and chalked it up to terrible carb counting. Then we moved on to trying figure out how to tell our 13 year old that computer games were not a good enough reason to buy a faster, very expensive computer. All in a days work. In light and love, Carol","sackid-yahoo-groups","Fri Mar 5, 2004 02:13 PM" ,"(No subject)","Hello Everyone, Thank you all so very much for all your supportive e-mails. This is just so wonderful. Every one of your e-mails have helped me in so many ways. Any info on camps and how to get her signed up would be great. Theresa, I would love to have a list of your guideline materials. Anything to give me new ideas on how to make this easier. The pump seems to be the way to go. I'm going to talk to Dr. P more about it at Lexi's next appointment. I was thinking of doing the Novopen for her injections but I watched the video and it seems to be alot of work. Has anyone tried that and how did you like it? Ouida and Mareesa, thank you for your wonderful message. Everyone of you have made me and my family feel so wonderful. I feel like a huge weight has been lifted. Now I have friends to talk to about my fears, Lexi's fears and accomplishments and everything in the middle. Thank you again everyone for including my family in such a life changing experience we are all going through. God bless you all, Susan and Lexi __________________________________","sackid-yahoo-groups","Fri Mar 5, 2004 09:51 PM" ,"item re. Pregnancy","Friends, FYI from the latest issue of Diabetes Interview. Cheers, Lyra, teamhj@aol.com Are you or your partner pregnant? Do you, your partner, or any of your children have type 1 diabetes? If you answer ""yes"" to both questions, then the TRIGR study team needs your help. Recent diabetes research has pointed to a possible link between infant nutrition and the development of type 1 (insulin-dependent, or juvenile) diabetes in childhood. TRIGR is an international study looking at infant nutrition to find out whether the number of children who develop type 1 diabetes can be reduced. TRIGR does not interfere with breast feeding practices. For more information on TRIGR, please call before the baby arrives. Contact Ellen Greenberg at 1-212-851-5425 or by email emg25@columbia.edu ","sackid-yahoo-groups","Fri Mar 5, 2004 11:14 PM" ,"Re: Digest Number 233","In a message dated 3/4/2004 3:33:10 AM Pacific Standard Time, SacKidDiabetes@yahoogroups.com writes: I was wondering if any of you know of a support group/childrens group in the Elk Grove area. I really want to get Lexi involved with other diabetic kids. Right now she is feeling very different than her friends and I want her to see that there are other kids just like her. Thank you everyone for your e-mails and support. Hi Susan, It is difficult at first, but believe me, in no time at all you'll be carb counting in your sleep. Kyle age 6 almost, was diagnosed just in May, and I remember trying to cook that first dinner. I felt like I had brought a newborn home from the hospital but had forgotten the owners manual. I was frantic trying to get the meal ontime, make it only 30 carbs since thats what he had in the hospital..............it was quite a scene I'm sure. But within just a few months I found I needed the carb book less and less, and now just 6 mos . later I have numbers in my head I never knew I could remember. And Kyle is certainly the most number savvy boy in his kindergarten class. I tell them it's like he's had an electronic flashcard device that he reads the number 4 times daily - so he has a wonderful concept of numbers, and how to add up numbers, how many carbs are in a Ritz cracker vs. a banana....amazing. Anyhow, for peers with diabetes check with the school nurse. You may be suprised to find another child right at your own school. If not, there surely are some kids at other neighborhood schools. There are 4 kids with diabetes at our elementary school of ~500 kids. Also, there is a great little book you can download and print from your computer with pictures that describes diabetes from the kids point of view. It's called ""My Own Type 1 Diabetes Book"" and can be downloaded at www.grandmasandy.com. This may be helpful for her if she wants to share with her friends what diabetes is all about. Good luck, and thank you for sharing your story. Katie Horn ","sackid-yahoo-groups","Sat Mar 6, 2004 07:30 AM" ," Greetings from the Great White North!","Hello to Everyone- It has been a while since I have posted. So much going on always. It is great to hear from all of the parent s who are dealing with aspects of Diabetes for the first time. To all of you going through the difficult ""it's not fair"" stage, it does get better. My daughter Eva, who is 10 and will hopefully start on a pump in the next few weeks, came home from school after reading about a child who has Cystic Fibrosis and Eva told me that she was glad that she ""just has diabetes""! I guess we just feel that we will keep our situation because it is familiar. I know that it takes a while to get to the familiar stage, and that doesn't mean that it isn't important anymore. But like so many of you have said, it is living your life and making diabetes fit. We have always customized our way of dealing with all that diabetes entails, from home and car to school and church. I always say that with three diabetic kids and six that are not I have more groceries all over town than a major food store! The kids will ask for a snack at home and another will say ""as long as it isn't portable"" They all know that the portable food goes to school and everywhere else. Ean who is 7 and has been pumping for 1 year , has a twin sister, Elizabeth and she is learning carb counting with Ean teaching her how to read lables and portion sizes.Thesupport that our kids (everyone's) can give each other is invaluable. Camp is great. Eva has gone for the last 2 years, Ean went for the first time last year and Elliott has gone for for 9 going on 10 years and has been a counselor for the last couple of years. It has been a great source of support for the kids (and Eva gave up a chance to go to Karyoli's gymnastics camp to go to diabetes camp!) I think that raising a child with diabetes is just like many aspects of our lives as parents. We listen to all of the advice from anyone who has been there and then we do what works for us. It is great to hear from so many people and to know that we are definitely not alone with this. Eva should be getting her pump at the end of the month, so we will be down to Sac a few times. It is a long trip but absolutely worth the quality of care. Well, enough of my novel. Just thought I would chime in from the great white north,( It snowed this week!) Take Care- Cyndy Heintz ","sackid-yahoo-groups","Sat Mar 6, 2004 06:53 PM" ," RE: Digest Number 235","Hi Susan, about the Novapen junior, it has been a miracle for us! They taught Mareesa how to give her own injections with this pen. It is not complicated AT ALL.....because of this pen she is now giving her injections herself at school! It is very simple and looks less scary than a syringe. She just phones me with the carbs and I go over how much insulin she is to give herself then verify the units with the school nurse. It made her more independent and able to care for herself without Mom or Dad being there all the time. We had a real struggle(as a lot of you know) with Mareesa giving her own injections until the Novo pen junior. She also struggled with where she wanted to give injections. The stomach was too scary for her so she moved to her arm and is doing great!! She even went backwards for awhile and we took over her injections all together. I found this is very normal and we stopped pushing her so hard and she finally started giving her injections by herself again!! The pump is our next step. She has not decided what she wants to do yet. From everything I have read and Dr.P has told me(we watched a video) this really gives a diabetic more freedom. Just take one day and one step at a time,it will all work out in the end. Take care, Ouida","sackid-yahoo-groups","Sun Mar 7, 2004 12:24 AM" ,"newly dx son","Hello everyone! My name is Stephanie Woodard and my son Ryan (age 7) was just dx (Feb. 24) with type 1 diabetes. I have really enjoyed reading the messages that you have posted and have received some great hints and information. If there is anything else I should know... I am in reception mode. :) My husband and I live in Lincoln with our two sons - Ryan 7 with type 1 and Nathan 5. This is all very new to us but we seem to be dealing well as a family. Nathan was apprehensive at the first shot of insulin since he had just had his 4 Kindergarten shots, but now is learning how to carb count himself. We are treating this as a family disease but not letting it rule our lives. The only question I have is re: the NovoPen. Is it really easy to use? What size needles are available? Should I have 2 since Ryan is on Humalog and Lantus? I will keep reading and hope to hear from you soon. If any of you are in Lincoln, Auburn, Rocklin, or Roseville and would like to get together or talk let me know. I think Ryan would really enjoy meeting someone his own age that has diabetes. There is one girl at his school, but I have not been able to contact her parents. Thanks! Stephanie Woodard","sackid-yahoo-groups","Sun Mar 7, 2004 03:00 AM" ,"We're in Roseville!!!!"," Hi Stephanie, We are on your side of Roseville and my son, Christopher is now eight. We are over by the Roseville Aquatic Center if you know where that is. Please feel free to call us at 771-3374 and we can get together sometime. I wish I could write more now but we are on our way out. Just wanted to let you know that we are here and would love to meet all of you! Brenda Pieper","sackid-yahoo-groups","Sun Mar 7, 2004 04:42 AM" ," RE: Digest Number 236","Hi Stephanie and Ryan! I posted a message yesterday concerning the Nova Pen Junior my daughter Mareesa is using. Are you seeing Dr. P? Just ask your Dr. about changing to a pen and he\she should set you up. We order the screw on needles, Novalog, Humulog, and Lantus.(along with the other supplies of course)so we have back up insulin. If we run out of the syringes or needles for the pen we always have the other. Mareesa takes Lantus at night so we still need the syringes also. As I said, it has been a blessing in our lives for Mareesa to switch to a pen. There is a dialing device on the pen she turns, to equal how much insulin she is to give herself. It is less scary for her compared to the syringe. (She will use the syringe if she has to but would prefer the pen-she has come along way in just over a year). So will you and your family. It does sound like your all doing very well with it and are not letting the disease take over YOUR lives. It can easily happen. Welcome to the group. We live in Yuba City if Ryan would like to meet Mareesa(age 9)She felt so alone at first too. It was heart breaking for me to see her like that but we have met a few other children and it seems to help her a lot. Just over a month ago one of Mareesa's 11 yr. old cousins was diagnosed with type 1.....I talked to his mother over an hour on the phone when I called her. The family is doing fine and learning something new everyday. Take care, Stephanie and Ryan. Ouida and Mareesa ","sackid-yahoo-groups","Sun Mar 7, 2004 09:10 PM" ,"Re: Digest Number 235"," Susan, The novopen video does make it look like work. And I worried about having to leave the pen in for a few seconds as they showed, thinking how popular that would be with Kyle. But let me assure you it is FABULOUS! So easy, he and his sisters can easily give his own shots. Without having to draw up the correct dosage, I feel comfortable when we go out that he'll get the right amount of insulin. His sisters age 9 and 11 learned how to give him injections just a few months after diagnosis. So that has brought us a lot of freedom. And Kyle (5) can do the injections and get the right dosage and get the pen all set up by himself too (but he still prefers someone else to inject). This will be a huge help for him next year at school when he must get insulin after lunch. It's also easier at restaurants and when you are out and about because you dont have to protect a fragile glass bottle, draw up the insulin.....It's really wonderful. I was nervous about changing over to it, thinking we were doing just fine with the regular shots, but now I love the pen and can't wait for them to come out with a lantus pen as well. I do encourage you to give it a try. Good Luck! Katie ","sackid-yahoo-groups","Sun Mar 7, 2004 07:46 PM" ,"Re: Digest Number 235","We second that suggestion to ask the school nurse about other kids with diabetes. That's how Julia got hooked up to the 4-5 other kids with diabetes (numbers varied) at her 1900-student high school in Davis. (I think that's a relatively typical percentage.) At the nurse's suggestion, they all got together once (Julia says it was a bit awkward--older kids have their own dynamics), but they remembered who the other kids were and served as a sort of ""invisible"" support group on campus. She got to be pretty good friends with one of the boys, who coincidentally also chose the same college she attends. She and (a few times) he did presentations in the health classes at school. The next year we called all the kids we had found out about in town who had type 1, and got everyone together for an afternoon at a park. Not sure how many ""fast friends"" were made, but we know about each other and are aware of which schools the kids are in, etc. One coincidence: When Julia was a counselor at the school district's winter science camp, a child was diagnosed while she was there. ","sackid-yahoo-groups","Mon Mar 8, 2004 03:48 AM" ,"Re: newly dx son"," Hi Stephanie, Welcome to the group. It's good to hear that you are coping well. There's alot to learn at first but it gets easier. Talia is almost 6 and used the NovoPen Jr. before she started pumping when she was 4 and 5. She loved the pen and found it very easy to use. This pen is used with Novolog, the Novo Nordisk version of Humalog. The novolog for the pen comes in preloaded cartridges that you put in the pen. Right now, they do not have a long acting insulin like lantus for the pen but I believe they will soon. One great advantage of the pen is that it delivers very accurate doses of insulin and you can adjust it in 1/2 unit increments. Another advantage is that it uses 31 gauge x 1/4"" needles. They are very short and fine so they hurt less than regular syringes. It also takes less time to give each shot because you don't have to draw the insulin from a bottle, you just dial up the dose on the pen. In light and love, Carol ","sackid-yahoo-groups","Mon Mar 8, 2004 11:30 AM" ,"Re: Digest Number 232","Dr. Prakasam, Please add Linda Howell to this listserve. Her son attends Kyle's school and he is seen at Stanford. blnhowell@aol.com Thanks. Katie Horn","sackid-yahoo-groups","Mon Mar 8, 2004 06:47 AM" ,"Survey","If you haven't heard, the American Diabetes Association and the Disablity Rights and Education Fund are doing a survey about diabetes in CA schools. It doesn't take long & gives you an opportunity to let them know ""the good, the bad and the ugly"". You may not be able to double click the site, but here it is: http://ada.inquisiteasp.com/cgi-bin/qwebcorporate.dll?2GEJD5 ","sackid-yahoo-groups","Mon Mar 8, 2004 11:25 PM" ,"First time writer"," Hello everyone. My name is Chelsea and I've been reading all of your postings. I have a 7 year old daughter named Cheyanne she was diagnosed at 16 mos. old. We just recently started seeing Dr. P a few months ago. Before him we saw Dr. Sheikholislam. It's amazing how different they are. Dr. Shiek told us that Cheyanne probably wouldnt be able to start the pump until sge 9 or 10. Dr. P wants to start her on it this year. :) So we're exicted but a little apprehensive at the same time. Reading everyones comments and suggestions on the postings really eases our minds. Thank you. We haven't been to any diabetes camp yet, but hopefully we will be able to go this year. It sounds wonderful and we cant wait. Cheyanne is very open about her diabetes with school mates and friends. Since thats the only life shes ever known. But she does questions why there aren't other children with diabetes that she knows. So I'm sure this will make her feel more comfortable with her diabetes. We haven't had our visit with the PENS team about the pump yet. (We go in May) But I'm totally uneducated about the pump. It sounds pretty easy. WIth practice and patience I'm sure we will be pros in no time. If any one has any tips or suggestions that we could use to make our transition from syringes to pumping any easier fell free to let us know. Once again Thank You ALL for all the support and comments. Chelsea and Cheyanne :)","sackid-yahoo-groups","Mon Mar 8, 2004 06:53 PM" ," Re: Digest Number 234","Hi Carol-- Thanks for your response. I appreciate your input. You asked what Thad thinks about the pump--he saw it at camp last year and is really open to it. I think we're a little slow switching over because he's also okay with giving injections. If he wants to eat something outside the meal plan, he says, ""I'll take a shot for it."" The shots really aren't a problem. It's all the testing. I cringe every time I have to poke his finger even though he doesn't complain. Maybe I'll be able to sleep through the night once Thad is on the pump, huh? But I read that it requires even more testing, at least at first.... I'm also interested in the pen. Thad has been giving himself injections at school, but the pen sounds like it would be more accurate, and I like the fact that the needle is even smaller (someone posted that earlier). Anyway, I just wanted to thank you, Carol, for taking the time to respond. I appreciate your friendship and support and what you give to the whole list. Best wishes--Brenda Novak ","sackid-yahoo-groups","Mon Mar 8, 2004 11:24 PM" ,"Re: Digest Number 234"," Hello Lexie. I am Lexie to. I am diabetic I am 7 years old. I was 18 months old when I got diabetes. I don't think we are different. At first we are scared and shaky. But you will get a hang of it. I was scared too. I never wanted my shots anywhere else on my body only my Tummy. but I had a visit with Dr. P and was scared he told me to get it some where else and it was dinner time and I decided I was ready and got my dinner shot in the arm. And you know what else? about diabetes If you have a low you have to have some sugar and a carb after that. Then the low will go away and you will be OK. If you have a high that means your hands can get clammy and your feet will get sweaty too. Your Mom may have to give you a shot. But if you want sugar the kind we cant eat like cake or candy be sure to tell your Mom don't be like me. sneaking it. But I learned my lesson and I can now eat sugar free candy like gummy bears and chocolate. And a lot more stuff. I have to go and I will e-mail you again. If your Mom lets you can e-mail me @ LexMcguir@aol.com. Your diabetic friend Lexie Hello Susan and Family, Yes we have been in your shoes and it seems like no end. With time you will be able to handle all this overwhelming. There are a lot of people willing to be our support here. Thank goodness for DR. P and the Pens team (that I haven't had a chance to personally meet yet) but my husband tells me he's very happy and excited with the support he gets. My Daughter says to tell you about the Bearskin Meadows Family Camp. This was a really good learning experience for the whole family non diabetic kids included. If you haven't had a breather since being diagnosed this will be your break. At camp the counselors are all pretty much diabetics, and are prepared to handle the situation what ever it may be. Even though we have had to deal with this our selves for sometime we still are learning. We may see a pump for Lexie in the near future if only I could get the pump bolus or what ever it is the pumpers do. You see what I mean I'm still learning. Susan I have an address you can write for more info.or if somebody know the e-mail address please send it to Susan. Diabetic youth Foundation 1954 Mt. Diablo Blvd., Suite. A Walnut Creek, CA 94596 (925)937-3393 Lexie's Mom Jenny ","sackid-yahoo-groups","Tue Mar 9, 2004 05:42 AM" ,"Re: Digest Number 234","Hi Brenda, It's my pleasure. In light and love, Carol ","sackid-yahoo-groups","Tue Mar 9, 2004 11:05 AM" ,"Re: First time writer"," Hi Chelsea, Here is a good website that compares the pumps that are available on the market today: http://www.diabetesnet.com/diabetes_technology/insulinpumps.php Pumping has really helped Talia, who is almost 6 years old, to lead a more normal life. Just today, when she was picked up at school by our neighbor who we carpool with, the children all decided they wanted to play together. They all went to my neighbor's house and as soon as they arrived there, one of the children wanted a snack. It was only one hour since lunch so Talia joined them in a snack without testing and we just covered the carbs she ate. Then they had another snack later when she did test and we covered those carbs with another bolus, and then they snacked yet another time and she had one more bolus. Prior to pumping, all this snacking would have been impossible and I would have asked her to wait to eat instead of doing lots of shots. Now granted, my neighbor is a saint and called me each time they wanted to eat and I figured out what to do, but it still enabled Talia to be with her friends and do what they were doing. I have also realized that since she is pumping she has gone to alot more friend's houses. It is so much easier for other people to care for her when she can use her pump to give herself insulin instead of a pen or a syringe. Alot of people are afraid of needles, so even when she did the shots herself, it was hard for them to watch her so they didn't really invite her over. Another odd thing has also helped Talia alot. With the widespread use of the Atkins diet, I have found that alot more nondiabetic adults know how to count carbs because they are doing it for their own weight loss programs. I took her to a new friend's house to play and I was going over how to carb count snack if they should have one and the mom pulls out the same carb counting book that I own and says, ""No sweat, I'm a pro at this, I've lost 20 pounds counting carbs."" I was absolutely delighted. You and Cheyanne will know when pumping is right for you and the PENS team will get you going on the right foot. You can start a little now on the journey toward pumping by reading, ""Pumping With Insulin"" by John Walsh. It's a technical book on the in's and out's of pumping. In light and love, Carol ","sackid-yahoo-groups","Tue Mar 9, 2004 11:42 AM" ,"Re: Digest Number 238","Hey all, I have been following along with the Digest in the last few months. Yesterday I was lucky enough to run into the Pefleys at UCSB and it was really refreshing to meet such a conscientious family with such a wonderful attitude about diabetes. My parents have been active in this website and in the Target 1 group, and I owe them so much for all their loving support. That said, I would like to offer a suggestion to all you parents with young diabetic children: check out diabetes summer camps! I got diabetes rather late (dx 16) but I worked as a CIT and a counselor at a few camps and it was so liberating. As a diabetic it really is a unique experience to be in an environment where you are surrounded by people who not only understand what is going on in your body, but are experiencing a lot of the same emotions along the way. I don't have the camper experience, but I can vouch for the campers I worked with that camp can be the best part of their summers because the focus is NOT on their blood sugars (although lots of attention is paid to how campers are feeling and all counselors and CITs carry fanny packs with testing supplies and glucose tablets), but rather on having fun! We always went hiking, swimming, camping, fishing, rapelling, rock-climbing, as well as hosted carnivals, dances, and talent shows. My shameless plug is for Camp Conrad-Chinnook, which is rather far for us Nor-Calers, but definitely worth the trip. It is located in Big Bear (near San Bernardino) and is run by Rocky and Debbie Wilson--a teriffic family operation. I was lucky enough to meet this amazing couple the week I was diagnosed, and they convinced me to work for them that summer. The medical staff is extremely reliable. Camp CC has existed as a diabetic camp for about 50 years, which is impressive. I would say about 80% of the staff has type 1 diabetes. I think the applications are due in the next month, which is why I am bringing this up now. Camp CC has one week sessions for ages 7-9, 10-12, 11-13, and I think 12-15. If your child is 16 or over, then he or she can apply to be a CIT. After two years of being a CIT, one can apply to be a counselor. Also, Camp CC has some fabulous family camps for long weekends in the summer and sometimes throughout the year. More information can be found at www.diabetescamp.com Other good camps include Camp Bearskin Meadow, which is nearer to Sacramento. I worked at Camp De Los Ninos (in Santa Cruz) two years ago and was not impressed. I don't have to tell you all to demand the best care for your children because just by reading your emails and knowing that you work with Prakasam- you already are- but my best recommendation for camps is definitely Camp Conrad-Chinnook. All the best and good luck! Thanks, Julia Halprin Jackson, 19 invinciblewoman@umail.ucsb.edu","sackid-yahoo-groups","Tue Mar 9, 2004 10:59 PM" ," Re: Digest Number 238","Hi Julia, Thanks for the encouraging words about diabetes summer camps. It can be hard as a parent to let go enough to send your child to camp when there aren't extenuating circumstances and when you add diabetes to the mix, it can feel impossible. Your post gave me alot of confidence that Talia could benefit from being in a group of kids with diabetes. In light and love, Carol ","sackid-yahoo-groups","Wed Mar 10, 2004 11:30 AM" ,"Re: Re: Digest Number 238","Re: Summer Camp Nicholas, who has been diabetic since 2 1/2, has been to camp Conrad 3 times. We have been to family camp togethter and he has gine by himself. At each visit we achieved an exponetial leap in our techniques and approach to managing diabeties: One of the biggest eye openers is to observre the miserable treatment some kids are getting from their parents due to misconceptions about the skills required to manage diabeties. In short, many parents are still in shock, deep down feeling sorry for themselves that they are in this situation. It is tough to develop the clinical detachment required when it is your own child. Simply put, one must try everyday to manage the situation better today than yesterday, learning from mistakes and taking satisfaction when a job is well done, aware that just when you have it all figured out puberty will happen. Secondly, the staff, and espescially, Dr Wes Smith, offer an example of how to approach the situation, because the ultimate goal is to provide the best management for the duration (perhaps 10 or 20 years until some quantumn leap in management or ""cure""). Thirdly, at each camp we as a family attainted improvement in our technique - the kid accepted better ways to do things, and he achieved a higher skill level. (ie he learned to give himself shots etc.) Also, it is important to come up with a technique for giving up hour to hour control to someone else, because this is what has to be done at school and if the child is to lead an increasingly independant lifestyle, which is the ultimate goal. Talking face to face with other parents at family camp, and then observing how they actually handle their kid is interesting. It is a learning process, both positive and negitive. And of course most kids have a great time. The only camp we have been to is Conrad, and it was a difficult but essential step in our development as a family managing diabeties. Good luck. ","sackid-yahoo-groups","Wed Mar 10, 2004 05:05 PM" ," Freestyle Test Strips","Here's an FYI for anyone else using the FreeStyle Meter and Test Strips. I was trying to make sense of the co-pay I pay at the Pharmacy for supplies and after 2 hours on the phone with Blue Cross I discovered the following: My insurance co (Blue Cross of CA, Individual Plan) pays for prescriptions through ""Well Point Pharmacy"". They have a Formulary List which lists the items they will cover. When we used the One Touch Ultra meter and strips I had a $30.00 co-pay per prescription because they are on the list. When we changed to the FreeStyle meter and strips I had a 50% co-pay. Instead of $30 per refill I was paying $72.08 Blue Cross was unable to tell my why Freestyle strips were not on the list and my only recourse was to file a grievance. Grrrr. So check the Formulary List for you Prescription coverage before changing meters. The fact that the FreeStyle meter is smaller (important for children) and requires less blood did not seem to be reason enough. Double Grrr. Any suggestions? Sincerely, Holli Lehner","sackid-yahoo-groups","Wed Mar 10, 2004 11:47 PM" ," School Survey","Hi all, I just got done completing the ADA survey on in school care for our kids. Which I have been battling since Jessica has been dx. Thanks to Lisa @ PENS team I know take our school nurse with a grain of salt. First and foremost our children need qualified individuals at their schools in case of any emergencies. I don't feel that my daughter has that. Fortunately I only work a short distance away from her and I can be at her side within a few minutes. And I understand that not all of us have that luxury. To all concerned parents (which is all of us) please fill out the survey. Best of luck to all and I hope all is well. If any kids or counselors out there know anything about Camp Mc Cumber can you please e mail us. I really want Jessica to attend a camp full of other kids just like her. Thanks. Laura :) ","sackid-yahoo-groups","Thu Mar 11, 2004 01:40 AM" ," RE: School Survey-New Writer","Hi. I am a first time writer who finally signed up to the site yesterday after our visit with Dr. P. I am really impressed at all of the advice, information, and support that this site offers. My son Morrison, who just turned 2, was dx last August and it has been quite a wild ride since then, as all of you know. My wife and I both work at the same company, and prior to dx would commute from Pollock Pines to Rancho Cordova while Morrison attended a family day care in Pollock Pines. Ursula had only been working part-time prior to dx; however due to the quality of care being provided at day care, she was planning to resume her career full time. Of course this all changed after the dx. We both took considerable time off after the dx, and luckily our company allowed her to work at home part-time (although she would have to come to the office occasionally). We would still send him to day-care, with Ursula present, for the social interaction with the other children. The day care provider volunteered to still care for Morrison even after his dx, so we slowly trained the staff on the care of a diabetic child. When the day care provider felt comfortable with testing, counting carbs, injections, and being able to determine if Morrison was high or low by his physical signs, we left him with the day care provider on a limited basis while Ursula worked at home (you can imagine how much work you can do with a 20-22 month old around). When the day care provider had questions or felt unsure of dosage they would call. In short, the day care provider did an exceptional job with Morrison’s diabetic care (as well as we were doing) during a difficult stage (honeymoon) where we ended up having to dilute his Humalog to get proper dosages. A couple of months ago this all changed when the day care provider was renewing her insurance and mentioned that she took care of a diabetic and gave injections. The insurance provider stated that that was in violation of the California State Health and Safety Code and would not re-new her insurance unless she stopped giving Morrison his injections. Well we were floored. This was something that neither of us would have ever considered. We gave the day care provider good training (which actually helped us out as well for you learn something much better when you train someone for that task), detailed instructions, and left all of our phone numbers (as well as Dr. P’s), and in an emergency Ursula was normally just a couple of miles away. The day care provider is allowed to do glucose testing, however we had to register with the state. He continues to go to day care part-time, and Ursula or myself have to go over and give him his lunch time injection, which is sometimes tricky when Ursula has to go into the office. After we researched the California Health and Safety Code as well as the California Business and Profession Code we contacted the ADA and they put us in contact with DREDF. This is a great non-profit organization that advances the rights of the disabled. They were the group that changed a previous law to allow glucose testing to be allowed in day care and schools. They have been looking for a good case to try to change the laws stated in the California Health and Safety Code and the California Business and Profession Code (which are in violation of the American Disability Act and other California State disability laws) to allow insulin injections be given to trained personnel other than family members and registered nurses in day cares and public schools. We have met with DREDF concerning the case and they seemed very interested in pursuing it, although we have not heard definitively if they will take the case or not. They did say that it would be much easier to change the law if more people came forward with similar experiences. I was excited to see the survey in the ADA newsletter (although somewhat dismayed when the links would not work – thanks for the link motik57) which focuses on school care. Please fill out the survey. I would have liked to, but it does not apply to day care (although our school district currently employs only one nurse who works three days a week). If you have had a similar experience with day care, please respond and I will be happy to forward the e-mail to DREDF. Strength in numbers is the only way to give our children the rights that they are entitled to. It is kind of ironic, how prior to Morrison’s birth we would never have considered him going to day care. However, seeing how much fun he has playing with the other kids, the amount of exercise he gets, and how much he learns from the other kids changed all of that. It is a great experience for him. And as much as an inconvenience it is to us, we are able to juggle our schedules around and deal with it. However, we cannot help but to think of a single mother in a similar situation, who does not work at a company that accommodates their situation. This would be a truly difficult. In closing, I would like to say that Morrison is doing very well. He is a healthy, happy (although sometimes hates his shots and finger pricks), energetic two year old who loves playing with the kids at day care. As with all parents, we want the best for Morrison both medically and socially. Diabetes is a disease that can be treated effectively and there is no reason why children should be singled out because they have to take blood glucose readings and be given injections. I look forward to reading more of the postings and getting more involved with the group. The TT1 group looks great as well. Hopefully we can attend some meetings. Thank you for your time and I will look forward to your responses. Thomas Parker ","sackid-yahoo-groups","Thu Mar 11, 2004 03:40 AM" ,"Re: School Survey-New Writer","Hi Thomas, I applaud your efforts with DREDF and wish you good luck. We have not had this experience with daycare so I can't help you there, however, I do have a suggestion. A daycare provider can't give an injection of insulin according to the law, but could they give a bolus with a pump? I bet the law either states something about syringes or isn't specific enough to exclude pumps. It's not the real answer, but it could really help you. I know that not many children your son's age are on pumps in this country, but in Europe I understand that they are. Ask Dr Prakasam if this might work for Morrison and your family. In light and love, Carol","sackid-yahoo-groups","Thu Mar 11, 2004 10:10 AM" ,"Re: Digest Number 239","Julia, I was glad to hear your plug for diabetes camps--as I've mentioned before, they've been great for Jake; he's gone the last two summers. He's 14 now, and ""graduated"" from youth camps, so we're checking out the teen camps--any comments from the experienced would be welcome! I was interested to hear your comment about Camp de los Ninos because that's where Jake went the last 2 summers, and he had a great experience--can't wait to go back next year as a CIT, when he's 15. Is there something about the camps I should be aware of (feel free to reply off list if you prefer)? There's some information on diabetes camps in California (though not all of it's been updated for 2004) at http://www.childrenwithdiabetes.com/camps/d_07_1ca.htm Details about the camps run by the Diabetes Society (for 2004) is available at http://www.diabetesscv.org/camp/index.html Many of the camps have application deadlines in April, as I recall, and they do fill up. I remember the first year Jake was diagnosed we were too late for all the camps (he was diagnosed 9 May). ","sackid-yahoo-groups","Thu Mar 11, 2004 11:59 AM" ,"RE: Digest Number 240","My daughter, Mareesa went to camp McCumber last June. It is out of Redding just about 8 miles from Shingletown. It is so beautiful. Our school nurse set us up so I will find out more info. And let you know. Mareesa wants to go back so I need to talk the nurse today anyways. Like I said before, it was the best thing for her and she talks about going back all the time. I will let everyone know in the next few days some more information about the camp. I know Eva's Mom may know more because I believe her son is a counselor there. Take care everyone, Ouida","sackid-yahoo-groups","Thu Mar 11, 2004 07:51 PM" ,"RE: Digest Number 240","Could someone please send me the school survey, I can't seem to find it. Thanks, Ouida ","sackid-yahoo-groups","Thu Mar 11, 2004 09:31 PM" ,"RE: Digest Number 240","Ken and Ouida- Here is the link to the school survey. http://ada.inquisiteasp.com/cgi-bin/qwebcorporate.dll?2GEJD5 Thomas Parker","sackid-yahoo-groups","Thu Mar 11, 2004 10:10 PM" ," RE: Re: School Survey-New Writer","Hi Carol, I appreciate your input and support. We really have not considered the pump at this early age and neither Dr. P nor the PENS group have suggested it. And unfortunately we could not imagine him being on the pump right now...just too young. We did try the pen, but Morrison hated it (the needle had to stay in him too long)and we were not sure if he was getting the full dosage (even after the needle was in him for more than 10 seconds we would pull it out and the novalog would keep coming out). We were at our PENS group yesterday and had Rosanna as our nurse who does the transfers from injections to pumps. We told her about our situation and she did not recommend the pump at this time. However, she did mention that they were trying to form training classes for diabetic care for non-medical care givers (other than parents) that would include a certificate. This was definitely encouraging, however the laws as written would still need to be changed so that registered nurses and parents (or the children themselves)would not be the only ones allowed to give injections while in school or day care. Thomas Parker ","sackid-yahoo-groups","Thu Mar 11, 2004 10:35 PM" ,"RE: Digest Number 240","Hi all, As camp season is approaching, I'd love to hear from folks who have attended family camp - has anyone gone to Beasrskin Meadows? I had a friend who worked as a counselor there in college and spoke highly of it to me again after Kyle's diagnosis last May. Camp Conrad sounds nice, but where is it? How long of a drive? Any other family camps other than those 2? Having never done diabetes camp I can't give much testiomny there, but in my previous life I was very active in Easter Seals Camps for the physically challenged. Over the 15 yrs. of involvment with those, I have watched kids grow up at camp, and the leaps in independence and self esteem are enormous. That week of camp was the best week of the year for many of the kids - one camper I met at age 10, is now in his 30's and is starting up our old camp in the high sierras again for the first time this year - despite his severe physical limitations he went on to marry and have a family and a business, and attributes his success to his years at camp. I'm sure diabetes camp will do the same for the child living with diabetes - put them in touch with peers who know what their life is like. Give them positive role models and tools to build self esteem and tools to help them make smart choices as they become teens and young adults. Don't underestimate the power of camp! Katie Horn","sackid-yahoo-groups","Thu Mar 11, 2004 07:00 PM" ,"RE: Digest Number 240"," Camp Conrad is an excellent camp. It is in the mountains above LA near Bear Valley. What makes it special, is the sucess they have had a SAFELY managing a camp full of diabetic kids. Nicholas has been several times. Give us a call, and we can tell you more. Howells ","sackid-yahoo-groups","Thu Mar 11, 2004 07:16 PM" ," RE: Digest Number 241","Thanks Tom for the school survey site. I filled it out this morning. I'm still finding out more about Camp McCumber as the nurse was not in yesterday. I will let you all know when I know. Thanks, Ouida","sackid-yahoo-groups","Fri Mar 12, 2004 08:31 PM" ,"Re: Digest Number 241","Thomas, I read your problem about having to leave the pen in a long time and the dripping problem with the novolog. We too had that problem. It does seem to drip, drip, drip and I was never sure if it was all going in or what..........After about 7 months of use now, and knowing Kyle's numbers better, I can say with certainty that even though I still see drips, I know he is getting the right amount of insulin, or else his next number would be too high. I finally have settled into doing my 1 or 2 unit air shot, then wiping with the alchohol wipe, then dialing the dosage and immediately injecting (don't want too many drips between dialing and injection). But my husband doesn't worry about the drips at all, and Kyle's numbers are still fine. So likely the drips aren't a big deal after all. We hold it in for just a little extra - like a count of 3 - and Kyle who is 5 does say that the pen hurts less than a syringe (although he doesn't particularly mind the syringe either). I did learn that there is more than one needle for the pen - because I was given a box of longer ones once. So be sure you have the 31G 6mm needle for the smallest/shortest one. We have found the pen to be a wonderful help, once I felt I could trust it's accuracy. If you can determine that the drips are not affecting the numbers in your case either, you may find it's the best switch you ever made. Good luck. Katie Horn","sackid-yahoo-groups","Fri Mar 12, 2004 09:04 PM" ,"Diabetic Dog"," Hi All, I had a kind of interesting experience at our veterinarian today. I have a 14 year old dog who has not been feeling well and one of the things the vet wanted to check out was whether or not he might have diabetes. He had to send a blood sample out to check his blood glucose level and Alc. I wondered if the monitor I had in my purse would work with a dog's blood. I tried it and it seemed to work fine, but are the readings accurate for a dog? If anyone knows if the same monitors and strips work for a dog I would like to know. In light and love, Carol","sackid-yahoo-groups","Sat Mar 13, 2004 11:37 AM" ,"diabetic dogs","Hiya, Turns out, a guy who wrote a BIG thick veterinary endocrinology book works down the hall from me. Roughly, all mammals have the same blood glucose levels. We tested our old Chessie when it looked like she was losing weight and seemed to pee more than normal. Also, dogs and cats are treated with human insulin, as they have the same insulin amino acid sequence. cheers, ","sackid-yahoo-groups","Sat Mar 13, 2004 09:49 PM" ," New file uploaded to SacKidDiabetes","Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the SacKidDiabetes group. File : /Diabetes Resource list1[1].doc Uploaded by : gprakasam Description : Word file with a comprehensive List of Diabetes Related resources You can access this file at the URL http://groups.yahoo.com/group/SacKidDiabetes/files/Diabetes%20Resource%20list1%5\ B1%5D.doc To learn more about file sharing for your group, please visit http://help.yahoo.com/help/us/groups/files Regards, gprakasam ","sackid-yahoo-groups","Sun Mar 14, 2004 09:33 PM" ," Diabetic Dogs","Hi Carol, I just had to write as this dialog has had me chuckling. Two stories come to mind. One was a friend who called me for advice on dealing with diabetes. Knowing that his whole family battles Type 2 and he has always been borderline, I quickly suggested he consult his dr. since I am not qualified to help. He meekly told me it had to do with his dog! He felt terrible asking since he was afraid that I would think he was putting my awesome child on the same plane as his dog. Of course that was not the case and I was glad to help! Now he is running home on his lunch hour to feed his dog more frequent meals so his blood sugar stays more stable and he doesn't each furniture with each low blood sugar! The other story has to do with a visit to the PENS team. Anyone from PENS can correct this story if I have it wrong but Rosanna and I were discussing how smart teens can be and how she has learned so many of their tricks in showing good numbers on their meters. One instance was a teen that had PERFECT numbers and Rosanna knew something was up. On further investigation she found out that they were testing their CAT!! Good luck, Carol, hope all is well! Brenda Targeting Type 1","sackid-yahoo-groups","Sun Mar 14, 2004 11:04 PM" ,"File - DID YOU DO IT?","Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness. ","sackid-yahoo-groups","Mon Mar 15, 2004 02:12 AM" ,"CA Bond to raise money for stem cell research","I just received notice of the following through the Children with Diabetes e-newsletter. I tried pasting the site hoping it would be a ""double click"" away. Unfortunately it didn't work. Please take the time to write in the URL and send it to everyone you know in CA. Then go out and collect signatures. Having worked on trying to pass initiatives before, it is an uphill battle. This is what was written in the e-newsletter: The California Stem Cell Research and Cures Initiative has the goal of passing a $3 billion bond initiative in California to provide $290 million per year for 10 years to fund embryonic stem cell research to cure type 1 diabetes and other illnesses. They are looking for signatures from voters in California and financial support. http://www.curesforcalifornia.com/site/PageServer Judy Cherney","sackid-yahoo-groups","Mon Mar 15, 2004 10:46 AM" ,"Re: diabetic dogs","Hi John, Thanks alot for the info. I have had my dog as long as I've had my son and I'm pretty attached to him. He does not have diabetes according to the blood glucose level I got, but I'll wait on the A1c to feel sure. He does have Lyme disease and that has slowed him down quite a bit, but he is also 98 in people years so I guess he's entitled to be a little slow. In light and love, Carol","sackid-yahoo-groups","Mon Mar 15, 2004 02:06 PM" ,"Re: diabetic dogs","Hi Brenda, Well now you have me chuckling. What can't these children with diabetes think of!!! In light and love, Carol","sackid-yahoo-groups","Mon Mar 15, 2004 02:09 PM" ," Re: Digest Number 244","Hello All, Just a quick note to ensure all of us that life goes on.... Our daughter Ashley, now 10, was diagnosed with diabetes on a trip to disneyland 2 years ago January. We went through the typical ups and downs of diagnosis, then settled into a pretty good routine. I am happy to tell all now that almost 2 years to the day, we returned to disneyland and had a wonderful time. We ate and bolused our way through every adventure and food stand in the park, and after 4 days we only had 1 number outside our range of 80-150! Not too bad and Ashley was thrilled, but now mommy and daddy are a little tired and can sing the theme song from Pirates of the Carribean in our sleep! Cheers to all, The Stidham Family","sackid-yahoo-groups","Mon Mar 15, 2004 11:50 PM" ,"Camp McCumber","I have been having trouble posting and recieving from the list. I am trying this post from the website Hope it works! : = Hi Laura! I am glad you asked about camp McCumber! We have had great experiences with this camp. Our son Elliott has gone for the last 9 years and has been a counselor for the past few. Eva is 10 and has gone 2 years and Ean went last year for the first time. It is a smaller camp but I have found it well run and the kids love it. It would be great if Jessica could go. They also have ""camperships"" available if cost is an issue. I hope this helps. Feel free to use my e-mail if you have any questions ""off list"". Cynthia Heintz kidsmomof9@hotmail.com","sackid-yahoo-groups","Tue Mar 16, 2004 01:10 AM" ,"Re: Digest Number 241","Hi Katie! Hope you and your family are doing well! I've thought at various times of switching Clay to Novalog to use the pen. Couple of questions (for you or others): How does the needle size and length compare to the BD ""ultra-fine short with 1/2 unit markings"" that we're used to? Also I may be anal, but I often dose as fine as 1/4 or 1/3 units by ""splitting"" markings on the syringe. You're finding little difference with small drops--do you think Kyle's insul/carb ratio negates these small discrepancies? Thanks, Clay's Dad, Mark ","sackid-yahoo-groups","Tue Mar 16, 2004 01:27 AM" ," I am sharing this flier about a free diabetes camp in Elk Grove","FLIER FOR YOUR INFORMATION: THE DIABETES SOCIETY'S=CALIFORNIA CAMPING PROGRAM 1165 LINCOLN AVENUE, SUITE 300 SAN JOSE, CA. 95125 = 1 (800) 989-1165 = FAX: 1 (408) 287-2701 Celebrating 40 years of community service Our camps are designed to help campers have fun in safe environment, to develop self-esteem and confidence in effective diabetes self- management techniques, to learn and expand social skills – effective communication, interpersonal relations and social values. ELK GROVE FREE DIABETES DAY CAMP Saturday May 15, 2004 Day Camp is the place for fun and adventure, it provides vital educational experiences for children to learn more about their diabetes. The Elk Grove Lions Club has reserved the Senior Center of Elk Grove off Sharkey Avenue. The campers will enjoy playing fields, play ground equipment and indoor activities such as arts and crafts, group games and education. The Elk Grove Lions Club will provide a morning and afternoon snack as well as a lunch. Staffing includes nurses, dietitians and caring counselors who are devoted to providing a safe environment. Day Camp runs from 9:00 am to 3:00 pm. Day Campers (ages 4 - 12) enter camp day with a sense of anticipation, and return home in the afternoon full of self- confidence and fun. The program is designed to provide continuous development for the camper who has been to camp before or for the newly diagnosed. Most importantly, Day Camp is one of the few places where children have the opportunity for group interaction with other children their own age, who also have diabetes. To Register, you may call: 1 (800) 989-1165 x 121 or visit our website www.diabetesscv.org and download our registration form.","sackid-yahoo-groups","Tue Mar 16, 2004 03:28 AM" ,"www.diabetesscv.org/camp - UPCOMING CAMPS","Cruise Camp June 21, 2004 to June 25, 2004. Coed teens ages 13 to 17. Ship leaves from the port of Los Angeles. Activities include beach activities on Catalina Island, cruise activities, and diabetes education. Larry L. Hillblom Camp July 11, 2004 to July 17, 2004. Coed youth ages 8 to 12. Located in the beautiful Sierra Nevada Mountains on Sequoia Lake, near Fresno. Activities include lake activities, repelling, overnight backpacking excursion, a youth dance, and diabetes education. Camp De Los Niños August 15, 2004 to August 21, 2004. Coed youth ages 6 to 13. Located on the San Lorenzo River near Boulder Creek in the Santa Cruz Mountains. Activities include climbing wall, swimming pool, archery, crafts, campfire, nature studies, and diabetes education. Camp DJ Sequoia Lake July 11, 2004 to July 17, 2004. Coed teens ages 13 to 17. Located in the beautiful Sierra Nevada Mountains on Sequoia Lake, near Fresno. Activities include lake activities, repelling, overnight backpacking excursion, a teen dance, and diabetes education. Counselor-In-Training at Camp De Los Niños August 14, 2004 to August 21, 2004. Coed teens ages 15 to 17. Learn hands on skills in planning and directing group games, crafts, sports, counseling skills (include positive discipline techniques), and diabetes education. Youth Day Camps San Jose: June 28, 2004 to July 2, 2004. Sacramento: May 15, 2004 and November 13, 2004. Day Camp is offered to children ages 4 to 12 years old. Age appropriate activities include sports, crafts, ice-skating, as well as diabetes education. Weekend Family Camps Hillblom: April 23, 2004 to April 25, 2004 and October 8, 2004 to October 10, 2004. Santa Cruz: May 21, 2004 to May 23, 2004. Lake Tahoe: September 10, 2004 to September 12, 2004. Family camp is a three-day weekend of updated information about diabetes, traditional camp activities, plus an opportunity to meet other families who can share and understand your experiences. To register or to learn more, please contact: Call the Diabetes Society at 408-287-3785 ext. 121, or visit our website and download a registration form at www.diabetesscv.org/camp. ","sackid-yahoo-groups","Tue Mar 16, 2004 03:31 AM" ,"(No subject)","Hi Jenny and Lexie, Thank you so much for your wonderful messages. We have been trying to e-mail you through your own addresses but we keep getting messages back that it couldn't be delivered. Lexie, Lexi says hi and she would really like to meet you so maybe your mom and I can set something up. Jenny, please give me a call and I would love to talk with you. 689-6636 or 761-7154. What area do you live in? Call me when you have a chance. Take care, Susan and Lexi","sackid-yahoo-groups","Tue Mar 16, 2004 08:14 AM" ,"Re: Digest Number 245","Mark, The smallest needles for the novolog pen are a tiny bit smaller (I think) than the needles you are using. The ultrafine short are the ones we still use for his Lantus. Someone can correct me if I'm wrong. They all look about the same, but I think, technically they are a little smaller. I think the small discrepencies with the drips are taken care of by his carb/insulin ratio. Before we switched to the pen, I too used to try to give Kyle 1/4 units of insulin........ I have a friend who is a pediatric nurse at UCDMC and she saw me do this and just laughed. She said you can't possibly be that accurate - even with 1/2 unit dosing. She as a nurse has never given anything smaller than 1/2 unit dosing and told me not to worry about it. So I gave up on that and did my eyesight a favor :) The pen was wonderful because Kyle can do all the prep - he loves to show it off to his friends. He can dial up the correct dosage, and when motivated can inject. Also easier for my mom or others to get the right dose rather than teach them how to draw out of the bottle. I find it easier in restaurants or whenever we are out because I don't have to deal with the bottle, and try to see how much insulin I've drawn up. Plus, I don't have a big syringe afterwards to deal with. I've found I can cap the needle off and leave it on the pen, putting the whole thing back in it's case till I get home, leaving nothing to dispose when out and about. Anyhow, something to consider. Katie","sackid-yahoo-groups","Tue Mar 16, 2004 09:19 PM" ,"unsubscribe",,"sackid-yahoo-groups","Wed Mar 17, 2004 06:13 AM" ,"Re: Digest Number 246","Hi Susan, I wish we lived close. But I have a funny feeling we don't. Anyway we live in Hughson. that's Hughson Calif. Just outside of the Famous Modesto, CA. I will give you a call soon. We will be up in Sacramento on the 29 of this month to see Dr. P and the rest of the Gang. If you can try and E-mail again @ this e-mail NASCARnanner20@aol.com Jenny ","sackid-yahoo-groups","Wed Mar 17, 2004 05:14 PM" ," $25 rebate for NovoLog","To All; While searching for the differences between NovoLog and Humalog, I found a rebate for $25 for NovoLog. Just check out www.novolog.com and you should see a link for the rebate form. Offer expires 6/6/04. Stephanie Woodard","sackid-yahoo-groups","Fri Mar 19, 2004 03:03 AM" ,"Update 3/04","Well well well, changes are happening!!! First let me tell you that I read these posts almost daily, and still get encouraged by your kids!!! Sometimes I think I am a big baby. Even now I get my little life is unfair attitude. Then I get online and read about the triumphs of your children and get rejuvinated. So here goes. As you all know, I am currently out of the medical field. I am a manager at Mimi's Cafe and absolutely LOVE my job. I appreciate what a manager goes through now, thats for sure. I guess I needed to realize that it is not all about me!!! I did learn alot about managing from my job with Dr. Prakasam though. The stress levels are much higher and the stakes are much higher in a medical office than a restaurant. With medical, your dealing with the lives of your patients. Insurance ALWAYS gets in the way of good care. In a restaurant the biggest thing I worry about is cost of food and making people happy. I manage 120 employees, at both the Elk Grove location and now the Arden location. I Love my job!!! The hardest thing is taking care of myself. I work anywhere between 9-12 hours a day, sometimes 7 days straight. I dont have time to take care of a low blood sugar, so I run my numbers high (180-230) I know this is bad, but when your in the middle of a busy dinner rush, who has time to grab a snack???? EXCUSES, I know. Then the bomb shell. Two things actually. Upon leaving my job with Dr. P, I simultaneously found out some not so great news about my health, contributing to my mood swings and lack of control. Inoperable right now, but the plan is within the next year I will be able to have surgery. I also found out recently that my kidneys are damaged, and I have the beginnings of diabetic retinopathy. They say that with tight control the damage to my eyes is reversable. I still dont get that, I always thought that it wasn't. Sometimes I just think they are just saying that so I take better care. Dr. Tricks!!!! I am not taking that chance though. I am 29 years old, and would like to see my nephew grow up. :-) So, the good news..... I am no longer on my pump. Well, right now anyways. I took myself off of it because it was giving me a false sense of control. I take lantus now, and only take the one shot a day. Because of my recent weight loss, I need MUCH less insulin, and do pretty well with this. My highest blood glucose was 226. YIPEE. So not all in the health aspect is bad. I see an endocrine team next week for the first time since I was a teen. NOT LOOKING FORWARD TO IT, but I know it is neccesary. I miss Dr. P. In other news, I am moving to Florida to be closer to my parents, Aunt and Grandfather in November. I will be transfered with Mimi's Cafe and working in ORLANDO!!! I cant wait. My husband and I are VERY happy and excited to start fresh in a new environment, and quite frankly, I miss my mommy. So please pray that this will be a stress free transition. I would love to hear from you all. If you want to see whats new with my family..... you can see my personal website at www.tara.familyimage.net I miss you all so very much. SO PLEASE visit me at Mimi's. I love seeing you guys there!!!! In my thoughts always, Tara ","sackid-yahoo-groups","Fri Mar 19, 2004 12:41 PM" ,"Re: Update 3/04"," Hi Tara, Thanks for your update. You played a major role in our being able to care for Talia when she was first diagnosed so we feel a deep connection to you. Now that we mix our own dilution, we understand how stressful a process that must have been for you and we appreciate your expertise at it. I am sorry to hear that you are experiencing the beginnings of some of the complications of diabetes. I know in my heart that you will do the right thing and make good decisions for your health. You have a spark for life and moving to surround yourself with supportive family members only reinforces to me that you want good things for yourself. We hold very positive and fun thoughts and prayers for you. In light and love, The Davies Family (Doug, Carol, Dougie, Ali, and Talia) ","sackid-yahoo-groups","Fri Mar 19, 2004 03:07 PM" ,"(No subject)","Hello Everyone, I wanted to let everyone know that my sister,Betsy, and I have started a support group in the Elk Grove/Laguna area. My daughter Lexi (61/2 yrs) was diagnosed in Jan. 2004 and her along with my husband and kids wanted to start a group to help us along with everyone else all the ups and downs of diabetes. We have named the group HOPE. The first get together will be on April 24 at my house. There will be conversation, food and games for the kids. We look forward to meeting all of you. Please e-mail me at momof3@lanset.com or call me at 689-6636 and I will be happy to give you directions. I was really surprised to find out there was not a support group already out in this area so I hope we can all come together, learn from one another and have our children make long and lasting friends. I hope to hear from all of you. Take care, Susan and Lexi _______________________________________________________________________ Internet Access, Shared & Dedicated Web Hosting. Colocation and Domain Name Registration at http://www.SharedPoint.com ","sackid-yahoo-groups","Sat Mar 20, 2004 08:30 AM" ,"Support for newly diagnosed diabetes - via internet and phone","I warmly applaud and welcome the formation of Elk Grove Support group. Please include enough information in the Database about the contact information for the local groups. I hope more such localized support will be available. Database of phone numbers and names of contacts is a very powerful tool. I would strongly encourage your participation in the Database. I am working with a team of like minded people to develop a phone/pc camera contact/support/bonding when a new child is admitted in the hospital. This will be a 1/2 hour chat with the family while they are in the hospital to help them organize their lives when they get back home (school, sports, lifestyle etc). I will be arranging a training session for parents who are interested to be in this support team to help families with new onset diabetes. ALL THE FAMILIES WHO ARE INTERESTED: Please call my office in the next several days - WITH YOUR CONTACT INFORMATION. I am hoping that I will have parents representing all age groups. I would also love to have children along with their parents who are willing to talk to the newly diagnosed kids. HOPE THIS WILL BE A VERY POWERFUL AND POSITIVE EXPERIENCE FOR all those who get involved. I will also work on getting special volunteer credits for children who are involved in this effort. For the numbers: Last year there were about 75 new children ( my Practice)","sackid-yahoo-groups","Sat Mar 20, 2004 06:57 PM" ,"Targeting Type 1","Hello Everyone!! I want to thank all of you, again, for the letters and calls we have received regarding Targeting Type 1! We are so excited to see our programs forming and our group taking off. Your support confirms what we have always known, we all need to work together to prepare our children for their future and their cure. Toward that goal, I am happy to finally announce our first event! Drum roll please........... Our Letter of HOPE Campaign will kick off on June 17th!! This will be a family or group event with a grand prize of Epcot proportions, (did I say that???). I hope that you will all save the date for this great event! This campaign will support our Outreach programs, our Camp Scholarship program and our goal of a cure! Anyone that would like to help with this event in particular is welcomed to write me personally. For those of you in the Stockton/Modesto area, Melissa Levario (Diego's mom)now holds a seat on our Board of Directors and will be setting up another informational meeting in your area. She is fantastic to work with and could really use your help down there. Her information is in the database on the website and she would love to hear from you. Anyone in Chico or Marysville/Yuba City? We would like to head your way soon. Please call me at (916)771-3374 and lets figure out a time/place to introduce TT1 to your area. I know that with the lack of Ped.Endo.'s in your area, this group could be a big help to all of you and your children. I am originally from Orland and had a hard time as a child with medical problems and few specialists. My family drove to SF for my treatments and now I am particularly sensitive to families in need of support in more rural areas. I hope to hear from you soon! Brenda Pieper Targeting Type 1, President","sackid-yahoo-groups","Sun Mar 21, 2004 06:15 AM" ,"6 Year Anniversary","Yesterday, March 20, marked 6 years since Kelly (now 11) was diagnosed with diabetes. What a rollercoaster ride it has been. What a brave little girl we have. Everyone, even her brother and sister, remembered that it was the anniversary; of course, the fact that it happened on the first day of spring helps us to remember the exact date. We spent quite a while talking about those first few days in the hospital; remembering the day we found out she had diabetes and how, by the time be got to ICU, her blood glucose level was 980 and they were talking about possible brain damage (which, thank God, didn't occur). We were all so frightened. We have all come a long way. When I read Dr. P's e-mail this morning I was reminded of the Mom (whose name I don't remember) who called me when we were still in the intensive care unit, and the Anderson family and the Demas family who have daughters with diabetes who spent hours talking to me in the beginning. It was very helpful. Since then, Kelly and I have visited and talked to several families who were newly diagnosed. It is very rewarding and very helpful, not only to the newly diagnosed family, but also to us. It reminds us how far we have come and how much we have to offer to other people. I strongly encourage anyone who can to sign up for this. We live in Rocklin, so it's not always easy for us to get to the hospital, but we can be supportive by phone or e-mial. Although it's past the month for honoring our kid heroes ( I haven't been able to post for a while, so I missed it), I want to share one of the many accomplishments Kelly has made. When Kelly was diagnosed, pre-Dr. P., the youngest child in Northern California to get an insulin pump was 10. We fought for a year to get pump for her. Finally, with the help of the Demas and Anderson families, the doctor and insurance company agreed and we got to spend a weekend in the hospital getting a pump, which was a huge waste of time and a horrible experience. However, getting the pump itself was well worth it all. It has been the best thing to ever happen in her diabetes care, and I am really thankful we were able to get it. For all of you families with kids under 10 who are pumpers and all of you who got it in an outpatient setting, you have Kelly to thank (and, of course, Dr. P!). She was very brave and went through a lot of hard times to make it all possible. Dr. P joined Dr. Sheikholislam's practice right after we got out of the hospital. He was wonderful. We met with him a week after she got out of the hospital with her pump, told him of our harrowing experience in the hospital, and he worked hard to make it so that other young children could not only get a pump, but not have to be hospitalized to do so. For those of you who are new to diabetes, it does get easier. The first few weeks are tough, but sooner than you may think, things start to get easier and you make it through. God will give you the strength you need to care for your child. Thank you to Dr. P and to Brenda Pieper for all that you have done to bring families with diabetes together. It is very helpful to have a support group. Colleen Nihen Right Angle Productions LLC www.rightangle.ws colleen@rightangle.ws 916/435-4160","sackid-yahoo-groups","Mon Mar 22, 2004 12:49 AM" ,"Re: 6 Year Anniversary","Congratulations, Colleen, for remembering the anniversary with a positive story on how far you have come. People often ask us what day the anniversary is for Christopher (dx four years ago at age 4) and I can never remember the day. It started out as an ordinary day with no reason to remember the date. Yes, we had a dr. appt for a possible bladder infection... the next four days are such a blur that we never noted the date. My mom brought a camera, knowing I would need to scrapbook this event as I do every other. We have discussed figuring out the anniversary, as Dr. P has it in his chart but Christopher prefers not to note the date as special days are for celebrating. As parents, we see so much progress to celebrate, especially his pump, but for him it just isn't the right occassion. I do thank you and Kelly for making the strides that you have made. I remember Dr. Sheik telling us that he had to be 10-12 for a pump. That he must be able to take care of his own diabetes first. I never understood that. I was taking care of him with shots, why couldn't I take care of him with the pump and not cry inside with every dose of insulin? I now know that we all need to be able to care for him in every way, should the pump fail, but his quality of life is so different that I catch myself every day saying, ""Thank you, God, for this pump!"". Thank you, too, Kelly and Dr. P for having the foresight to make this available for all children. As for support, wow, the new families we quickly build! Some of us are like relatives now! I cannot tell you how rewarding my new job has become as we gear up to take this on in a major way. I will cry the day that the first child goes to camp because of our efforts in Targeting Type 1! I can't wait to see what events the teen group will come up with! I can't wait for the Childrens' Hero Dinner when Dr. P is honored for all he continues to do (don't forget the staff!!). These are positive accomplishments that I am honored to be a part of. They keep our whole family focused on making lives better and not dwelling on the tough days. They are just days, we can work on changes for childrens' lives. The big picture is always brighter! Congratulations to the entire Nihen family! I can't wait to meet the rest of you! Brenda Pieper ","sackid-yahoo-groups","Mon Mar 22, 2004 02:42 AM" ,"Reply Request","When replying via your normal e-mail program, please delete the original message(s). It's really tough to sift though all of the messages to find the new ones. Thanks. Colleen Nihen Right Angle Productions LLC www.rightangle.ws colleen@rightangle.ws 916/435-4160","sackid-yahoo-groups","Mon Mar 22, 2004 08:55 PM" ,"Re: Update 3/04","--- In SacKidDiabetes@yahoogroups.com, ""Tara"" wrote: > Well well well, changes are happening!!! First let me tell you that > I read these posts almost daily, and still get encouraged by your > kids... Hi Tara! Glad to hear from you, and thanks for the update. Sorry to hear you'll be moving across the country, but it sounds like that will be good for you guys. Keep up the good outlook and please keep us posted in your adventures! Take Care, Mark","sackid-yahoo-groups","Tue Mar 23, 2004 12:44 AM" ,"Re: Reply Request","--- In SacKidDiabetes@yahoogroups.com, Colleen Nihen/Right Angle wrote: > When replying via your normal e-mail program, please delete the original > message... Hi Colleen! yep I agree, that's why I view all messages at the web site and use the email digest as a reminder! You might try that too! Take care, Clay's Dad, Mark","sackid-yahoo-groups","Tue Mar 23, 2004 12:50 AM" ," Re: 6 Year Anniversary","Thank you Kelly, Colleen, and family!!!! We are coming up on one year of pumping and Talia isn't quite 6 years old yet. I'm so glad that the children and families who have gone before us were brave enough to ask for better care for their children. I hope I can always do the same. In light and love, Carol ","sackid-yahoo-groups","Tue Mar 23, 2004 12:40 PM" ,"Targeting Type 1 - Outreach Program - Newly Diagnosed","Hi Everyone: I would like to introduce myself. My name is Nancy Day and I hold the position of Vice President for Targeting Type 1. In addition, I have been appointed as the Outreach Committee Chair. I am very excited to have this position since outreach and community support are truly important to me and after our first informational meeting at Sutter in February I realize how important it is to others as well. After reading many of the postings on this message board I realize what a fantastic group of parents we have among us that are driven by such passion and love for our children. My daughter, Mackenzie, was diagnosed at age 4 and is now 7. We are handling diabetes as well as we can and fortunately Mackenzie seems to deal with it very well. I wish the same for all families and plan to do my part to make a difference. We all remember that initial overwhelming feeling. I have recently started reading this message board and have seen that feeling described so many times and each time I read it I am just as impacted. Also, the success stories give me such hope! What we are looking for is anyone who may be interested in being part of our Outreach Committee. We need people from all over the region that are willing to be contacted by local Endocrinologists to meet with newly diagnosed families. This could involve a visit to the hospital, e-mail, a phone call, -or- we have been approached by Dr. Prakasam to be part of the Video Conferencing that you may have seen mentioned in his posting on this message board. We need parents representing all age groups from all areas, to help when connecting family to family. A lot of the communication for the committee itself will be by e-mail, but hopefully we would all be able to get a chance to meet face to face and share ideas. I know what a difference it made for me and my family to be connected up with a family that knew what we were going through. That family for us was Brenda, Steve and Christopher Pieper. They helped us so much. I have since met with many newly diagnosed families and hope that I have made a difference for them. Other aspects of the Outreach Committee will include: family events for networking -and- volunteers to connect within their own communities in starting some support groups. This will help to serve as a follow-up for those newly diagnosed. Susan Hastings and her sister Betsy Chick are in the process of starting a support group in the Elk Grove/Laguna area. Susan and her sister will be the facilitators and they have named the group ""Hope"". Their first meeting is scheduled for April 24th from 11am-1pm. If you have any questions you may call Susan at (916) 689-6636. Hats off to you Susan and Betsy!! If you would like to participate or are interested in finding out more about the Outreach Committee, you may contact me at 5days@softcom.net or phone me at (916) 686-2286. We understand schedules and assure you that it won't be too much for any one person. I believe it will be a very rewarding experience for everyone involved. Thanks for reading! Nancy Day","sackid-yahoo-groups","Tue Mar 23, 2004 11:11 PM" ,"TT1 Public Informational Meeting set for Modesto!!"," To all, This is SOOOO exciting!!!! I know that many of you were not able to attend the meeting that was held in Sacramento to introduce Targeting Type 1. It was an amazing meeting. For those of you interested and are in the surrounding Modesto area, we have scheduled an informational meeting open to all. I know that our daily lives are so very busy and, for many of us, we don't want to give Diabetes more of a place in our lives than it already has. Targeting Type 1 is a wonderful place to reach out to other families and encourage them to keep Diabetes in perspective. I could go on and on, but you just need to come to this meeting!!! Here's the info: PLACE: Doctor's Medical Center Conference Room (located between E.R. and parking garage) 1441 Florida Avenue, Modesto DATE: April 29th TIME: 6-8pm (refreshments provided) For more information or simply to RSVP, you can contact me at (209) 541-0132 or e-mail at mdlevario95307@yahoo.com THANKS and hope to see you there! Melissa Levario (mom of David (6), Diego (2)- dx 3/03","sackid-yahoo-groups","Sun Mar 28, 2004 12:54 AM" ,"Targeting Type 1","Hi everybody, It's been a while since I've posted anything, but I've kept up with all of your posts. For those of you who don't know me, I live in Redding and am the mother of Derek(6 1/2 now) dx at age 4, and Dustin age 3. Derek not only has type 1 diabetes, but also has been struggling with a brain tumor which was also dx ahen he was 4.(approximately 2 weeks after his diabetes dx) I am so grateful for this site and all of you!! Sometimes just reading all the posts, help to get me through the day. Derek is doing awesome in kindergarten this year. He has a nurse who ""shadows"" him throughout the day, and helps to keep my sanity...HA HA Derek uses Lantus at night and the novopen jr. We will be in Sacramento Apr. 5th to see Dr. Prakasam, and Apr. 6th for his MRI. I really wanted to see the PENS team, but couldn't get an appt. on these days. Maybe next time it'll work out. I really think Derek would enjoy being on a pump. He ""lives"" for food, and I think the pump would help him emotionally. School parties have been difficult, but he's doing alright. I'm interested in Targeting Type 1. If someone could e-mail me the info, I'd appreciate it!! The Redding area has a great need for diabetes support. May you all have a wonderful day. Decky Jellison","sackid-yahoo-groups","Mon Mar 29, 2004 01:21 AM" ," File - DID YOU DO IT?","Dear Parents and Children, Every week, you need to spend few minutes to identify your blood sugar pattern. Just writing down records is not sufficient. You will get this reminder every two weeks. This is to create an awareness. ","sackid-yahoo-groups","Mon Mar 29, 2004 02:27 AM" ,"Re: Targeting Type 1","Hi Decky! Great to hear from you again! I have been wondering how Derek is doing and how you are doing also. I still want to get together on my next trip to McCloud but we don't have it planned yet. Maybe we can work that out soon! I am glad to hear that you are interested in Targeting Type 1 and we would love to see this work continue in your area. There is a parent from this group named Nikki White that is working on at least a support group for your area. Maybe you two can get together. I will definitely be heading your way this summer and would love to stop and meet you and Nikki and anyone else in the group. I am passionate about the work we are doing for support and local research and am always happy to share it with others. God bless your whole family and I pray for a positive MRI. I know that Derek would love the pump as Christopher has. Food is now a great friend and parties are a piece of cake (great pun, eh???). Let us know how things turn out! Take care, Brenda Pieper President, Targeting Type 1","sackid-yahoo-groups","Mon Mar 29, 2004 07:16 AM" ,"Re: Targeting Type 1","Hi Decky, It's so great that you have a nurse that will shadow Derek at school. I also have a kindergartener this year and I whole heartedly agree with you that kindergarten is a wonderful experience. You are correct that the pump really helps with things like school birthdays. Talia carries a cell phone in her lunch basket and if a treat comes that the teachers don't know how to carb count, they call me and I take my best conservative guess at it. It also really helps her on days when the school schedule is different because of faires or festivals. She can eat her way through the day and I just keep bolusing her. Talia is also very into food. Regarding the PENS team, have Natasha put you on the waiting list for the 5th and 6th. She does get last minute cancellations from time to time and maybe you could get in. Since PENS is scheduled so far out, you might try scheduling a visit with them and then do the doctor appointments around it. I made that work once. I sincerely hope for Derek and your family that dealing with diabetes and a brain tumor isn't too overwhelming. We will keep you in our thoughts and prayers. In light and love, Carol ","sackid-yahoo-groups","Mon Mar 29, 2004 11:32 AM" ," RE: Digest Number 255"," Hi Decky, My daughter is also on Lantus and the Novopen Jr. Has Derek been to Camp McCumbr(I still have not heard anything on this camp from her school nurse everyone, I will ask again this week)out of Shingletown? Mareesa just loved it last year and looking forward to going this year! I hope everything goes well with the MRI for Derek. When I read your e-mail this morning I just had to e-mail you back. We all think diabetes is tough sometimes and then I read your story! I will pray for you and your family and thanks for the uplift this morning and getting me through the start of my day today...With what your have to deal with it inspires me to be a better person to deal with my daughters diabetes. I can't imagine what you and your family go through everyday. I am proud to be a part of this group and am thankful for the work everyone is doing in TT1.Thank you all so much. Brenda I'm still trying to contact some people here in Yuba City, so I will let you know. I also am getting signatures for the California Stem Cell Research Initiative. It's very interesting what people think about it. I need 50 signatures and have 20 already. I really hope it makes the Nov. ballot. Take care Decky and I will be thinking of Derek and your family. Ouida ","sackid-yahoo-groups","Mon Mar 29, 2004 08:25 PM" ,"Achievements","Momentous days are probably in the eye of the beholder but today was special for us. My husband went off to work and the kids were watching TV (Christopher is on break from school) and I put them in the car and took them out for donuts! We have NEVER done that! I know its not healthy but before the pump it just seemed like something we couldn't do on the spur of the moment. Going to a donut shop was tough because we wouldn't know the carbs and buying packaged donuts loses the spirit of being spontaneous. I would always just say to myself that they were just junk food anyway. But then so is half of the cereal out there! This silly feat came about because Christopher has suddenly hated his set changes to the point that he wanted to go back to shots. I told him that was an option and suggested that we replace all of his boluses for shots so he could see if that is what he really wanted without changing to Lantus just yet. He only wanted to go back to shots if we took off the pump all together. Last night he desperately needed a set change and I suggested that we give a shot instead and sit down for dinner. He wasn't sure what to choose and then I reminded him that Minimed sent us a box of the good old sets to get us through until they could replace our bad ones. He was willing to try one more set change and it went great! Now I am trying to find examples of all of the great life changes that the pump has brought us and going out for donuts was a fun start! I have to remember that children live for the moment and they may not always remember when life wasn't as good. I am constantly comparing and celebrating even the very smallest of rewards the pump has given us, such as having him stay at a friends house for dinner spontaneously without us running over there to give him a shot. At the same time, diabetes is always with us. This weekend Steve took the kids to the park a couple of blocks away and I was working in the yard. I heard the sounds of sirens heading this way and jumped in my car to run down to the park. Do they have a glucagon with them? Did I tell Steve that he was 92 when they left? Did he eat the snack I sent? When I got there, out of breath and very scared, the kids ran to greet me! I was never so happy to see him running my way! They were just glad that I chose to join them and I decided that the yardwork could wait and we should shoot some hoops together anyway... Steve had been underestimated and was well prepared and had just checked his number. Sorry, Honey... Thank you, God, for the beautiful day at the park, a responsible and loving husband and my healthy children that can run and play in the sunshine. Brenda Pieper","sackid-yahoo-groups","Mon Mar 29, 2004 11:19 PM" ,"Re: Achievements","Hi Brenda, Talia has also gone through some rough spots with set changes a couple of times. Just recently, she did do a shot instead of a bolus and was disgusted to remember that I would have to draw up the insulin before I would give her the syringe. She also said the shot hurt more than she remembered and she liked pumping because she could dial up her own dose. I too try to remind her from time to time what the pump gives her. Just today, she is going to play at a friends house that she hasn't gone to before and because she has the pump, the mom can check her bolus, not have to use a syringe. I have also found that set changes seem to go better for Talia if we do them in the morning, rather than the evening when she is tired from school. We have a routine now where a couple of mornings a week she takes her bath before school, we do the set change, then she has breakfast and heads out the door. We have also become speed demons at getting them done quickly before there's alot of time to think about the process. I am trainging hard right now so that I can pace a friend of mine the last 22 miles of a 50 mile race. It's alot of work but alot of fun also. The pump has allowed my son to babysit Talia while I train. They have realized that it is so easy for them to bolus that they have developed their own little snacking that they do they I might not normally allow. It's cute. I hope for all our children that someday diabetes will be cured and that all of us parents will be able to hear sirens and not worry about them. In light and love, Carol ","sackid-yahoo-groups","Tue Mar 30, 2004 01:11 AM"